Wallace-Watkin Carla, Sigafoos Jeff, Woods Lisa, Waddington Hannah
Victoria University of Wellington, New Zealand.
Autism. 2023 Apr 27;27(8):13623613231168240. doi: 10.1177/13623613231168240.
Parents might have problems in getting support services for their autistic child due to certain barriers. However, there might also be things that can ease or facilitate parents' access to support services. In this study, New Zealand parents were asked about their experiences in getting support services for their autistic child. We also looked at differences in reported barriers and facilitators based on several demographic factors with a focus on family level of financial resourcing. A total of 173 parents completed a survey. The results suggested that parents experienced several barriers, particularly related to service pathways. Facilitators were also experienced, predominantly related to providers. Financial resourcing predicted the number of parent-reported barriers. Both lower level of family financial resourcing and having a non-binary child predicted parents' rating of the extent of barriers. Child age and level of speech were predictors for reports of experiencing a higher number of facilitators, with parents of younger children or of non-speaking autistic children reporting a greater number of facilitators. We discuss how these results may be useful to support service delivery and identify areas for future research.
由于某些障碍,父母在为自闭症孩子获取支持服务时可能会遇到问题。然而,也可能存在一些能够减轻或便利父母获取支持服务的因素。在这项研究中,我们询问了新西兰的父母在为其自闭症孩子获取支持服务方面的经历。我们还基于几个人口统计学因素,重点关注家庭经济资源水平,研究了报告的障碍和促进因素的差异。共有173名父母完成了一项调查。结果表明,父母遇到了几个障碍,特别是与服务途径相关的障碍。也有促进因素,主要与服务提供者有关。家庭经济资源状况预测了父母报告的障碍数量。家庭经济资源水平较低以及有一个非二元性别孩子都预测了父母对障碍程度的评级。孩子的年龄和语言水平是报告遇到较多促进因素的预测指标,年龄较小的孩子或不会说话的自闭症孩子的父母报告的促进因素数量较多。我们讨论了这些结果如何有助于支持服务提供,并确定未来研究的领域。