Blain Janet, Stevens Dean, Taylor Louise, Kingston Paul, Watts Geoffrey
The Faculty of Health, Medicine and Society, University of Chester, Chester CH1 4BJ, UK.
Healthcare (Basel). 2023 Sep 15;11(18):2552. doi: 10.3390/healthcare11182552.
This paper contributes to the ongoing discussion in the United Kingdom regarding euthanasia and assisted dying, using data specifically related to individuals with dementia. A qualitative approach was taken with data captured via a set of written questions in the form of a Mass Observation Archive Directive. The respondents, known as Observers, provided written responses; there was no limit to the length of the responses and the Observers were able to provide as much or as little detail as they chose. The data were analysed thematically utilising NVivo software. One-hundred and seven responses were received, representing a range of beliefs, and with opinions regarding euthanasia and dementia with pro, anti, and uncertain views being expressed. Five main themes emerged during our data analysis: capacity, legislation, agency and personal philosophies, disquietude, and incumbrance. Consistent with previous research capturing public views regarding euthanasia and assisted dying for people with dementia, the findings suggest policy makers may wish to consult the British public regarding legislation regarding euthanasia and dementia.
本文利用与痴呆症患者具体相关的数据,为英国正在进行的关于安乐死和协助死亡的讨论做出了贡献。采用了定性研究方法,数据通过以大众观察档案指令形式提出的一系列书面问题收集。受访者,即观察者,提供书面答复;答复长度没有限制,观察者能够根据自己的选择提供或多或少的细节。利用NVivo软件对数据进行了主题分析。共收到107份答复,代表了一系列信念,对安乐死和痴呆症表达了支持、反对和不确定的观点。在我们的数据分析过程中出现了五个主要主题:行为能力、立法、能动性和个人理念、不安和负担。与之前收集公众对痴呆症患者安乐死和协助死亡看法的研究一致,研究结果表明政策制定者可能希望就安乐死和痴呆症相关立法咨询英国公众。