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针对炎症性肠病对“MyHealthyGut”数字健康应用程序进行修改的用户测试。

User testing to modify the MyHealthyGut digital health application for inflammatory bowel disease.

作者信息

Erlich Madeline, Lindblad Sarah, Haskey Natasha, Clarkin Darlene Higbee, Dong Taojie, Harvie Ruth, Lunken Genelle, Pirnack Jess, Jacobson Kevan

机构信息

Department of Nutritional Sciences, Temerty Faculty of Medicine, University of Toronto, Toronto, Canada.

Toronto 3D Knowledge Synthesis and Clinical Trials Unit, Clinical Nutrition and Risk Factor Modification Centre, St Michael's Hospital, Toronto, Canada.

出版信息

Digit Health. 2023 Sep 26;9:20552076231203664. doi: 10.1177/20552076231203664. eCollection 2023 Jan-Dec.

Abstract

INTRODUCTION

Inflammatory bowel disease, characterized by chronic intestinal inflammation, can be subcategorized into Crohn's disease and ulcerative colitis. The treatment for these conditions is unique to each patient and may include lifestyle changes, pharmaceutical intervention, and surgery. Lifestyle changes, such as dietary intervention, are a cornerstone of inflammatory bowel disease symptom management. Given the daily burden of this disease, self-management is paramount in coping with and/or minimizing symptoms. The MyHealthyGut application, successfully proven to be a self-management tool for celiac disease, shows promise for use in an inflammatory bowel disease patient population.

OBJECTIVE

To conduct user testing to gather valuable insights for the development of an IBD-focused version of the existing MyHealthyGut app.

METHODS

Participants included inflammatory bowel disease patients and healthcare practitioners. Participants used the application for a 2-week period, followed by participation in a focus group or individual interview to provide feedback. Qualitative questionnaires were administered verbally and feedback was recorded. Thematic analysis techniques were used for data quantification and analysis.

RESULTS

15 participants were recruited and enrolled. Of these, 14 participants took part in the focus group and/or individual interviews. The feedback suggested changes related to clinical uses, food and symptom tracking, ease of use, and educational content. All (100%) participants reported that they would either use the application themselves or recommend it to patients, once their suggestions were implemented.

CONCLUSION

Through user testing and feedback collection, priorities for app modification were identified. Areas for modification in the app functions and features, ease of use, and content were identified. Once updated to meet the needs of inflammatory bowel disease patients, the MyHealthyGut app may be a useful tool for IBD self-management.

摘要

引言

炎症性肠病以慢性肠道炎症为特征,可细分为克罗恩病和溃疡性结肠炎。这些病症的治疗因人而异,可能包括生活方式改变、药物干预和手术。生活方式的改变,如饮食干预,是炎症性肠病症状管理的基石。鉴于这种疾病带来的日常负担,自我管理对于应对和/或减轻症状至关重要。MyHealthyGut应用程序已被成功证明是乳糜泻的一种自我管理工具,有望用于炎症性肠病患者群体。

目的

进行用户测试,以收集有价值的见解,用于开发现有MyHealthyGut应用程序的炎症性肠病专用版本。

方法

参与者包括炎症性肠病患者和医疗从业者。参与者使用该应用程序两周,之后参加焦点小组或个人访谈以提供反馈。定性问卷通过口头方式进行,反馈内容被记录下来。采用主题分析技术进行数据量化和分析。

结果

招募并登记了15名参与者。其中,14名参与者参加了焦点小组和/或个人访谈。反馈意见表明需要在临床用途、食物和症状追踪、易用性以及教育内容方面进行改进。所有(100%)参与者表示,一旦他们的建议得到实施,他们自己会使用该应用程序,或者会向患者推荐。

结论

通过用户测试和反馈收集,确定了应用程序修改的重点。明确了应用程序功能和特性、易用性以及内容方面需要改进的领域。一旦更新以满足炎症性肠病患者的需求,MyHealthyGut应用程序可能会成为炎症性肠病自我管理的有用工具。

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Diagnostics (Basel). 2022 Dec 23;13(1):37. doi: 10.3390/diagnostics13010037.
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Phenome of coeliac disease vs. inflammatory bowel disease.乳糜泻与炎症性肠病的表型。
Sci Rep. 2022 Aug 26;12(1):14572. doi: 10.1038/s41598-022-18593-y.
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Diets for inflammatory bowel disease: What do we know so far?炎症性肠病的饮食:我们目前了解多少?
Eur J Clin Nutr. 2022 Sep;76(9):1222-1233. doi: 10.1038/s41430-021-01051-9. Epub 2022 Jan 22.
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Nutritional Treatment in Crohn's Disease.克罗恩病的营养治疗。
Nutrients. 2021 May 12;13(5):1628. doi: 10.3390/nu13051628.

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