帕金森病患者相关生活质量量表阿拉伯语翻译版的心理测量学特性：范围综述。
Psychometric properties of Arabic-translated-related quality of life scales for people with parkinson disease: a scoping review.
机构信息
Sociological Research Group on Contemporary Societies (GRESCO), University of Limoges, BP 23204, Limoges, 87032, France.
Institute of Sport and Physical Education of Gafsa, University of Gafsa, Gafsa, 2100, Tunisia.
出版信息
BMC Public Health. 2024 Sep 14;24(1):2505. doi: 10.1186/s12889-024-20002-0.
BACKGROUND
Parkinson's disease (PD) substantially contributes to poor functional outcomes, loss in productivity, and poor health-related quality of life (HRQoL). Despite the existence of various scales, there is a notable gap in existing HRQoL reviews with regard to the availability of Arabic validated scales. As a response to this gap, the aim of our scoping review is to identify validated scales, focusing on their psychometric validation procedures, to contribute valuable insights to the understanding of HRQoL among the Arabic-speaking people with PD.
METHODS
A scoping review was conducted at the end of December 2022, using the Medline and Embase databases. The focus of this review was on examining the psychometric properties and validation procedures of included scales. Articles were included in the full-text screening process if they focused on people with PD of any age, included a scale measuring HRQoL in Arabic, and were written in English, French, or Arabic.
RESULTS
After applying inclusion/exclusion criteria, 10 studies were selected to analyze HRQoL scales validated in people with PD. However, the PDQ-39 is the only HRQol PD specific scales validated in the Arabic language. Five studies validated in people with PD were identified in the context of instrument validation (3 generic, 1 specific validated in 2 studies).
CONCLUSION
There are several HRQoL measurement scales for people with PD. However, only one specific HRQoL instrument has been validated in Arabic for people with PD. For the remaining instruments identified they were just used in people with PD without being validated in this population.
背景
帕金森病（PD）严重影响患者的功能结局、生产力损失和健康相关生活质量（HRQoL）。尽管存在各种量表，但现有的 HRQoL 综述在阿拉伯语验证量表的可用性方面存在明显差距。针对这一差距，我们的范围综述旨在确定经过验证的量表，重点关注其心理测量验证程序，为了解阿拉伯语帕金森病患者的 HRQoL 提供有价值的见解。
方法
在 2022 年 12 月底，使用 Medline 和 Embase 数据库进行了范围综述。本综述的重点是检查纳入量表的心理测量特性和验证程序。如果文章侧重于任何年龄的 PD 患者，包括用阿拉伯语测量 HRQoL 的量表，且以英语、法语或阿拉伯语撰写，则纳入全文筛选过程。
结果
在应用纳入/排除标准后，选择了 10 项研究来分析在 PD 患者中验证的 HRQoL 量表。然而，PDQ-39 是唯一在阿拉伯语中验证的特定 PD 患者 HRQol 量表。在与仪器验证相关的背景下，确定了 5 项在 PD 患者中验证的研究（3 项通用，1 项特定，在 2 项研究中验证）。
结论
有几种针对 PD 患者的 HRQoL 测量量表。然而，只有一种特定的 HRQoL 仪器在阿拉伯语中针对 PD 患者进行了验证。对于其余确定的仪器，它们只是在没有在该人群中验证的情况下在 PD 患者中使用。
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