Ochoa de Eribe Marina, Puigpinós-Riera Rosa, Rodríguez Dolors
Agència de Salut Pública de Barcelona, Barcelona, España.
Agència de Salut Pública de Barcelona, Barcelona, España; CIBER de Epidemiología y Salud Pública (CIBERESP), España; Institut de Recerca Biomèdica, Sant Pau, Barcelona, España.
Aten Primaria. 2025 Jun;57(6):103177. doi: 10.1016/j.aprim.2024.103177. Epub 2024 Dec 21.
Go deeply into the barriers and problems that long-term surviving breast cancer must face to continue with their lives and what are the demands they suggest to society.
Qualitative study of interpretive type with a socio-constructivist perspective within the framework of the DAMA Cohort. SITE: the work was carried out in Barcelona.
The design of the sample was theoretical, and the participants were segmented taking into account the socioeconomic level and whether or not they had suffered any relapse.
It was set up six discussion groups of 6 to 12 participants each. A thematic analysis of the literal transcription of the audio files of the focus groups was done.
It has been found that the consequences of suffering breast cancer are not the same for those women who are self-employed as for those who work for someone else. However, tasks that require physical effort are difficult to continue doing, but those that require concentration and more intellectual effort are also difficult to perform too. Also, a series of aspects have been identified that women believe should be improved in the Health System: the lack or type of information given by professionals, the economic limit of the Health System and its consequences, the lack of medical care when treating something not directly related to the tumour, lack of sensitivity by some professionals and difficulties in accessing social benefits.
The results show that the main demands by long-lived breast cancer survivors are: having a balance between breast cancer, working life and a more Comprehensive Health System.
深入探究长期存活的乳腺癌患者在继续生活中必须面对的障碍和问题，以及她们对社会提出的需求。
在DAMA队列框架内，采用社会建构主义视角的解释性定性研究。
研究在巴塞罗那开展。
样本设计基于理论，根据社会经济水平以及是否经历过复发对参与者进行分组。
设立了六个讨论小组，每组有6至12名参与者。对焦点小组音频文件的文字转录进行了主题分析。
研究发现，自营职业的女性与受雇于他人的女性患乳腺癌的后果不尽相同。然而，需要体力的工作难以继续进行，而需要集中精力和更多智力投入的工作也同样难以开展。此外，还确定了女性认为医疗系统应改进的一系列方面：专业人员提供的信息不足或类型不当、医疗系统的经济限制及其后果、治疗与肿瘤无直接关联的疾病时缺乏医疗护理、部分专业人员缺乏敏感度以及获取社会福利困难。
结果表明，长期存活的乳腺癌幸存者的主要需求是：在乳腺癌、工作生活和更全面的医疗系统之间取得平衡。
