Kaufman Ana Cristina Pannain L, Périssé Andre Reynaldo Santos, Hofer Cristina Barroso
Instituto de Puericultura e Pediatria Martagão Gesteira, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brasil.
Ministério da Previdência Social, Rio de Janeiro, Brasil.
Cad Saude Publica. 2025 Feb 7;40(12):e00014624. doi: 10.1590/0102-311XPT014624. eCollection 2025.
Congenital Zika syndrome (CZS) is responsible for several malformations, including microcephaly. This study aimed to describe children's access to social public policies: lifetime benefit (E60) created in the face of the Zika virus public health emergency (Espin-ZIKV) or Continuous Cash Benefit/Type 87 (BPC/E87). Thus, this study compares the children's access before and after Espin-ZIKV. This was a cross-sectional study, with data extraction and description from the Brazilian Information System on Live Births (SINASC), the Registry of Public Health Events-Microcephaly (Resp-Microcephaly), and the Unified System for Benefits Information (SUIBE), from 2013 to 2021. We describe the E60 that were still active at the time of SUIBE data extraction in May, 2023. We compared the granting of BPC/E87 for microcephaly in 2013 and 2021 (before and after Espin-ZIKV). Of the 20,000,859 live births from 2015-2021, 20,464 suspected cases of CZS were reported in Resp-Microcephaly; 20% of affected patients received some social benefit: 705 received E60 and 3,822 received BPC/E87. The national average of BPC/E87 granted in 2013 for microcephaly was eight for every 100,000 live births (before Espin-ZIKV), while in 2021 it was five BPC/E87 for every 100,000 live births (after Espin-ZIKV) (p < 0.01). We observed 689 children with active E60 (from 3 to 8 years of age), in May, 2023. The study showed low social protection for children with suspected CZS. However, of those who benefited from the E60, 98% had active benefits in 2023, demonstrating the important survival of the benefited children. A reduction in the mean number of BPC/E87 grants for microcephaly without specified cause was observed after Espin-ZIKV.
先天性寨卡综合征（CZS）会导致包括小头畸形在内的多种畸形。本研究旨在描述儿童获得社会公共政策福利的情况：即面对寨卡病毒公共卫生紧急事件（Espin-ZIKV）设立的终身福利（E60）或持续现金福利/87型（BPC/E87）。因此，本研究比较了Espin-ZIKV实施前后儿童获得福利的情况。这是一项横断面研究，数据来源于2013年至2021年巴西活产信息系统（SINASC）、公共卫生事件登记处 - 小头畸形（Resp-Microcephaly）以及福利信息统一系统（SUIBE）。我们描述了在2023年5月提取SUIBE数据时仍有效的E60福利情况。我们比较了2013年和2021年（Espin-ZIKV实施前后）因小头畸形获得BPC/E87福利的情况。在2015 - 2021年的20000859例活产中，Resp-Microcephaly报告了20464例疑似CZS病例；20%的受影响患者获得了某种社会福利：705人获得E60，3822人获得BPC/E87。2013年因小头畸形获得BPC/E87福利的全国平均水平为每10万例活产中有8例（Espin-ZIKV实施前），而2021年为每10万例活产中有5例BPC/E87（Espin-ZIKV实施后）（p < 0.01）。在2023年5月，我们观察到689名儿童的E60福利仍然有效（年龄在3至8岁之间）。该研究表明，疑似CZS的儿童社会保护水平较低。然而，在那些获得E60福利的儿童中，98%在2023年仍享有有效福利，这表明受益儿童的生存状况良好。在Espin-ZIKV实施后，未明确原因的小头畸形获得BPC/E87福利的平均数量有所减少。
