Lipińska Klaudia, Bień Natalia, Rajczak Maria, Niedźwiedź Michał, Kowalski Paweł, Kobusiewicz Aleksandra, Bednarski Igor, Skibińska Małgorzata, Narbutt Joanna, Zalewska-Janowska Anna, Sobolewska-Sztychny Dorota, Ciążyńska Magdalena, Lesiak Aleksandra
Student Scientific Research Club of Experimental, Clinical and Procedural Dermatology, Medical University of Lodz, Poland.
Department of Dermatology, Paediatric Dermatology and Dermatological Oncology, Medical University of Lodz, Poland.
Postepy Dermatol Alergol. 2025 Jun 13;42(3):313-319. doi: 10.5114/ada.2025.152120. eCollection 2025 Jun.
Port-wine stain (PWS) is a congenital vascular malformation. It can result in inferior quality of life or stigmatization. Multiple questionnaires are used to collect data about patients' mental state.
The aim of the study was to investigate psychosocial well-being of patients with PWS using standardized tools and raise the awareness of the importance of mental health care in dermatological conditions.
59 adult patients filled an online survey consisting of 5 psychological questionnaires: Dermatology Life Quality Index (DLQI), Skindex-29, Perceived Stigmatization Questionnaire (PSQ), Dysmorphic Concern Questionnaire (DCQ), Hospital Anxiety and Depression Scale (HADS), and also provided demographic data and lesion characteristics. The data were subjected to analysis.
Out of the 59 patients, 86.4% were females and 13.6% were males. The mean age was 32.12 years. According to DLQI, quality of life was decreased in 52.5% of patients. According to HADS, 45.8% of patients were affected by anxiety and 22% by depression. Skindex-29 revealed that PWS had a moderate negative influence on patients' life. In more than half of the patients, perception of their body was disturbed due to DCQ results.
PWS affects psychosocial well-being of patients including their quality of life, self-perception of the body or feeling of stigmatization. Interdisciplinary approach is needed to provide patients with necessary psychological or psychiatric care.
葡萄酒色斑（PWS）是一种先天性血管畸形。它会导致生活质量下降或受到污名化。多种问卷被用于收集有关患者心理状态的数据。
本研究的目的是使用标准化工具调查葡萄酒色斑患者的心理社会幸福感，并提高对皮肤病患者心理健康护理重要性的认识。
59名成年患者填写了一份在线调查问卷，该问卷包含5种心理问卷：皮肤病生活质量指数（DLQI）、Skindex - 29、感知污名化问卷（PSQ）、畸形关注问卷（DCQ）、医院焦虑抑郁量表（HADS），同时还提供了人口统计学数据和皮损特征。对数据进行分析。
59名患者中，86.4%为女性，13.6%为男性。平均年龄为32.12岁。根据DLQI，52.5%的患者生活质量下降。根据HADS，45.8%的患者受到焦虑影响，22%的患者受到抑郁影响。Skindex - 29显示葡萄酒色斑对患者生活有中度负面影响。超过一半的患者因DCQ结果身体感知受到干扰。
葡萄酒色斑会影响患者的心理社会幸福感，包括他们的生活质量、身体自我认知或污名化感受。需要采取跨学科方法为患者提供必要的心理或精神护理。
