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患者参与家庭护理:对体验、克制和失去参与的纵向探索。

Patient Participation in Home Care: A Longitudinal Exploration of Experiencing, Refraining, and Losing Involvement.

作者信息

Hellzén Ove, Ness Tove Mentsen, Ingstad Kari, Ludvigsen Mette Spliid, Devik Siri Andreassen

机构信息

Department of Nursing Science, Mid-Sweden University, Sundsvall, Sweden.

Faculty of Nursing and Health Sciences, Nord University, Namsos, Norway.

出版信息

SAGE Open Nurs. 2025 Jul 28;11:23779608251362652. doi: 10.1177/23779608251362652. eCollection 2025 Jan-Dec.

DOI:10.1177/23779608251362652
PMID:40735068
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12304620/
Abstract

BACKGROUND

Ensuring safe and personalized healthcare requires that patients have opportunities to express their concerns and influence their treatment decisions, which is a core value in healthcare. Such involvement is crucial for realizing the ideal of ageing in place. Despite efforts to increase patient participation, significant challenges persist, especially among older people with complex health needs.

AIM

The aim of this study was to explore an older adult's experiences of patient participation within a care triad, as reflected in the interactions and perspectives of the older person, healthcare professionals, and a family caregiver in the Norwegian home-care context.

METHODS

This study employed a longitudinal single-case study with embedded units. Over 1 year, repeated interviews were performed with an older adult, his daughter, his general practitioner, and his responsible home-care nurse. Content analysis was used to analyze the data.

FINDINGS

The analysis resulted in three themes representing the participants' experiences and points of view regarding the older adult's participation in care: , , and

CONCLUSIONS

The findings indicate that the older adult desired involvement despite occasional reluctance and that his participation was affected by interactional and contextual factors. Professionals must realize that the starting point of patient involvement is the patient's perspective and understanding of care needs, which the professionals have a joint responsibility to meet.

摘要

背景

确保安全且个性化的医疗保健要求患者有机会表达自身关切并影响其治疗决策,这是医疗保健的核心价值。这种参与对于实现就地养老的理想至关重要。尽管为提高患者参与度做出了努力,但重大挑战依然存在,尤其是在有复杂健康需求的老年人中。

目的

本研究的目的是探讨在挪威居家护理背景下,老年人在护理三角关系中的患者参与体验,这体现在老年人、医疗保健专业人员和家庭照顾者的互动及观点中。

方法

本研究采用纵向单案例研究并嵌入单元。在1年多的时间里,对一位老年人、他的女儿、他的全科医生以及负责的居家护理护士进行了多次访谈。采用内容分析法对数据进行分析。

结果

分析得出三个主题,代表了参与者对于老年人参与护理的体验和观点: , ,以及

结论

研究结果表明,尽管偶尔会不情愿,但老年人仍希望参与其中,并且他的参与受到互动和情境因素的影响。专业人员必须认识到,患者参与的出发点是患者对护理需求的看法和理解,专业人员有共同责任满足这些需求。

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本文引用的文献

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Saturation in qualitative research: An evolutionary concept analysis.定性研究中的饱和度:一项概念的演进分析
Int J Nurs Stud Adv. 2024 Jan 5;6:100174. doi: 10.1016/j.ijnsa.2024.100174. eCollection 2024 Jun.
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Interprofessional Collaboration in Long-Term Care and Rehabilitation: A Systematic Review.长期护理与康复中的跨专业协作:一项系统综述
J Am Med Dir Assoc. 2022 May;23(5):764-777.e2. doi: 10.1016/j.jamda.2021.12.028. Epub 2022 Jan 20.
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Systematic review of patient-engagement interventions: potentials for enhancing person-centred care for older patients with multimorbidity.系统评价患者参与干预措施:增强多病共存老年患者以人 为本护理的潜力。
BMJ Open. 2021 Dec 16;11(12):e048558. doi: 10.1136/bmjopen-2020-048558.
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BMC Geriatr. 2021 Feb 6;21(1):112. doi: 10.1186/s12877-021-02050-y.
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Challenges and approaches to involving family caregivers in primary care.家庭护理员参与初级保健面临的挑战和方法。
Patient Educ Couns. 2021 Jul;104(7):1644-1651. doi: 10.1016/j.pec.2020.11.031. Epub 2020 Nov 28.
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Assessing and reporting patient participation by means of patient preferences and experiences.评估和报告患者参与情况,方法是了解患者的偏好和体验。
BMC Health Serv Res. 2020 Jul 29;20(1):702. doi: 10.1186/s12913-020-05574-y.
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