Bullinger M, Ravens-Sieberer U
Institut für Medizinizche Psychologie Universität München.
Prax Kinderpsychol Kinderpsychiatr. 1995 Dec;44(10):391-9.
Contrary to adults, health-related quality of life of children was only recently discovered as endpoint in pediatric research. On the basis of a theoretical and methodological introduction into quality of life research, the results of a recent literature search on the topic of quality of life and children as related to assessment instruments and their application in pediatric research are described. It is apparent that papers related to quality of life research of children only pertain to 13% of the papers related to adults. Also the majority of the few available assessment instruments from the angloamerican literature and their application in studies is very rare. The need for increased research in the area of children's quality of life is voiced.
与成人不同,儿童与健康相关的生活质量直到最近才在儿科研究中被视为一个终点指标。基于对生活质量研究的理论和方法学介绍,本文描述了最近关于生活质量与儿童这一主题的文献检索结果,内容涉及评估工具及其在儿科研究中的应用。显然,与儿童生活质量研究相关的论文仅占与成人相关论文的13%。此外,来自英美学界文献的少数可用评估工具及其在研究中的应用也非常罕见。文中表达了在儿童生活质量领域加强研究的必要性。