Schmid-Ott G, Jaeger B, Kuensebeck H W, Ott R, Lamprecht F
Department of Psychosomatics and Psychotherapy, Hannover Medical School, Germany.
Dermatology. 1996;193(4):304-10. doi: 10.1159/000246275.
Stigmatization is a central experience of patients with psoriasis with a broad psychic and social impact.
The purpose of this study is to identify the dimensions of stigma experience by a Questionnaire on Experience with Skin Complaints (QES; 'Fragebogen zum Erleben von Hautbeschwerden').
187 in-patients with psoriasis were examined with the QES, an adopted and extended (German) version of the Feeling of Stigmatization Questionnaire by Ginsburg and Link. A factor analysis of the questionnaire was conducted and the construct validity was evaluated.
Five factors were found: 'self-esteem', 'retreat', 'rejection', 'composure' and 'concealment'. Self-esteem, retreat and rejection are mainly influenced by 'problematic regions' affected by psoriasis, rejection also by 'visible parts' and retreat also by 'invisible regions'. The influences of age, age at onset and sex on the stigma experience are small but significant.
The QES proved to be an economical and reliable psychometric instrument to differentiate the stigma experience of psoriasis patients.
污名化是银屑病患者的一种核心体验，具有广泛的心理和社会影响。
本研究旨在通过皮肤问题体验问卷（QES；“皮肤问题体验问卷”）确定污名化体验的维度。
采用并扩展了金斯堡和林克的污名化感受问卷（德语版）对187例银屑病住院患者进行QES检查。对问卷进行了因子分析，并评估了结构效度。
发现了五个因素：“自尊”、“退缩”、“排斥”、“沉着”和“隐瞒”。自尊、退缩和排斥主要受银屑病“问题区域”的影响，排斥也受“可见部位”的影响，退缩也受“不可见区域”的影响。年龄、发病年龄和性别对污名化体验的影响较小但具有显著性。
QES被证明是一种经济且可靠的心理测量工具，可用于区分银屑病患者的污名化体验。
