Eisemann M, Richter J
Umeå University, Sweden.
J Med Ethics. 1999 Feb;25(1):37-41. doi: 10.1136/jme.25.1.37.
The subject of patient self-determination in health care has gained broad interest because of the increasing number of incompetent patients. In an attempt to solve the problems related to doctors' decision making in such circumstances, advance directives have been developed. The purpose of this study was to examine relationships between public attitudes towards patient autonomy and advance directives.
A stratified random sample of 600 adults in northern Sweden was surveyed by a questionnaire with a response rate of 78.2%. The subjects were asked about their wish for control of their health care, their concerns about health care, their treatment preferences in a life-threatening situation (both reversible and irreversible), and their attitudes towards the application of advance directives.
Numerous relationships between various aspects of self-determination in health care (desire for control, fears of over-treatment, and choice of treatment level) in general and advance directives, in particular, were found. Those who wanted to have a say in their health care (about 94%) also mainly supported the use of an advance directive.
The fact that almost 30% of the respondents were undecided concerning their personal use of advance directives points to a lack of knowledge and to the necessity of education of the public on these issues.
由于无行为能力患者数量不断增加,医疗保健中患者自我决定权这一主题已引起广泛关注。为解决在这种情况下与医生决策相关的问题,人们制定了预先指示。本研究的目的是探讨公众对患者自主权的态度与预先指示之间的关系。
采用问卷调查法对瑞典北部600名成年人进行分层随机抽样调查,回复率为78.2%。询问受试者关于他们对自身医疗保健控制权的愿望、对医疗保健的担忧、在危及生命的情况(包括可逆和不可逆情况)下的治疗偏好,以及他们对预先指示应用的态度。
发现医疗保健中自我决定权的各个方面(对控制权的渴望、对过度治疗的担忧以及治疗水平的选择)总体上与预先指示之间存在诸多关系,特别是那些希望对自身医疗保健有发言权的人(约94%)也主要支持使用预先指示。
近30%的受访者对个人使用预先指示尚未做出决定,这一事实表明公众缺乏相关知识,有必要就这些问题对公众进行教育。