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相似文献

1
Informed consent: moral necessity or illusion?知情同意:道德必需还是幻想?
Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i29-33. doi: 10.1136/qhc.0100029...
2
[The origin of informed consent].[知情同意的起源]
Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27.
3
[Patient autonomy and informed consent in clinical practice].[临床实践中的患者自主权与知情同意]
Tidsskr Nor Laegeforen. 2007 Jun 14;127(12):1644-7.
4
Informed consent and moral integrity.知情同意与道德操守。
J Med Ethics. 1989 Sep;15(3):117-23. doi: 10.1136/jme.15.3.117.
5
Patients' duties.患者的职责。
J Med Philos. 1992 Oct;17(5):541-55. doi: 10.1093/jmp/17.5.541.
6
The alchemy of informed consent.知情同意的微妙转变
J Clin Ethics. 2002 Spring;13(1):63-6.
7
Improving informed consent in clinical trials: a duty to experiment.提高临床试验中的知情同意:实验的责任。
Control Clin Trials. 1999 Apr;20(2):187-93. doi: 10.1016/s0197-2456(98)00064-6.
8
The practice of autonomy and the practice of bioethics.自主实践与生物伦理学实践。
J Clin Ethics. 2002 Spring;13(1):72-7.
9
Bioethics for clinicians: 7. Truth telling.临床医生的生物伦理学:7. 讲真话。
CMAJ. 1997 Jan 15;156(2):225-8.
10
Shared decision making in critical care: a clinical reality and an ethical necessity.重症监护中的共同决策:临床现实与伦理必然要求。
Am J Crit Care. 1996 Nov;5(6):391-6.

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Assent and consent in pediatric and adolescent research: school children's perspectives.儿科及青少年研究中的同意与赞成:学童的观点
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The impact of dental phobia on patient consent.牙科恐惧症对患者同意的影响。
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Supporting shared decision making within the MobiGuide project.在MobiGuide项目中支持共同决策。
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Systematic review of genuine versus spurious side-effects of beta-blockers in heart failure using placebo control: recommendations for patient information.使用安慰剂对照的心力衰竭中β受体阻滞剂的真实与虚假副作用的系统评价:患者信息的建议。
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The representation of risk in routine medical experience: what actions for contemporary health policy?常规医疗经验中的风险呈现:当代健康政策的行动方向是什么?
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9
A problem for achieving informed choice.实现知情选择的一个问题。
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Commentaries on "Informatics and medicine: from molecules to populations".关于《信息学与医学:从分子到人群》的评论
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本文引用的文献

1
How do patients' treatment preferences compare with those of clinicians?患者的治疗偏好与临床医生的相比如何?
Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i39-43. doi: 10.1136/qhc.0100039...
2
Variability in patient preferences for participating in medical decision making: implication for the use of decision support tools.患者参与医疗决策偏好的变异性:对决策支持工具使用的启示
Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i34-8. doi: 10.1136/qhc.0100034...
3
Importance of risk communication and decision making in cardiovascular conditions in older patients: a discussion paper.老年患者心血管疾病中风险沟通与决策的重要性:一篇讨论文章。
Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i19-22. doi: 10.1136/qhc.0100019...
4
The extent of patients' understanding of the risk of treatments.患者对治疗风险的理解程度。
Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i14-8. doi: 10.1136/qhc.0100014...
5
Understanding risk and lessons for clinical risk communication about treatment preferences.理解风险以及关于治疗偏好的临床风险沟通的经验教训。
Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i9-13. doi: 10.1136/qhc.0100009...
6
Measuring patients' preferences for treatment and perceptions of risk.衡量患者对治疗的偏好和对风险的认知。
Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i2-8. doi: 10.1136/qhc.0100002...
7
Knowledge and communication difficulties for patients with chronic heart failure: qualitative study.慢性心力衰竭患者的知识与沟通障碍:定性研究
BMJ. 2000 Sep 9;321(7261):605-7. doi: 10.1136/bmj.321.7261.605.
8
Urinary and sexual function after radical prostatectomy for clinically localized prostate cancer: the Prostate Cancer Outcomes Study.临床局限性前列腺癌根治性前列腺切除术后的泌尿和性功能:前列腺癌结局研究
JAMA. 2000 Jan 19;283(3):354-60. doi: 10.1001/jama.283.3.354.
9
Informed decision making in outpatient practice: time to get back to basics.门诊实践中的明智决策:回归基础的时候了。
JAMA. 1999;282(24):2313-20. doi: 10.1001/jama.282.24.2313.
10
Helping patients access high quality health information.帮助患者获取高质量的健康信息。
BMJ. 1999 Sep 18;319(7212):764-6. doi: 10.1136/bmj.319.7212.764.

知情同意:道德必需还是幻想?

Informed consent: moral necessity or illusion?

作者信息

Doyal L

机构信息

St Bartholomew's and The Royal London School of Medicine and Dentistry, Queen Mary & Westfield College, University of London, London E1, UK.

出版信息

Qual Health Care. 2001 Sep;10 Suppl 1(Suppl 1):i29-33. doi: 10.1136/qhc.0100029...

DOI:10.1136/qhc.0100029..
PMID:11533435
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1765746/
Abstract

There is a professional and legal consensus about the clinical duty to obtain informed consent from patients before treating them. This duty is a reflection of wider cultural values about the moral importance of respect for individual autonomy. Recent research has raised practical problems about obtaining informed consent. Some patients have cognitive and emotional problems with understanding clinical information and do not apparently wish to participate in making decisions about their treatment. This paper argues that such research does not undermine their potential to provide informed consent. Rather, sufficient resources are required to create better communication skills among clinicians and more effective educational materials for patients. Finally, cognitive and emotional inequality among patients is maintained to be a reflection of wider social and economic inequalities. Researchers who take the right to informed consent seriously should also address these.

摘要

在治疗患者之前,从患者那里获得知情同意的临床责任存在专业和法律上的共识。这一责任反映了关于尊重个人自主权的道德重要性的更广泛文化价值观。最近的研究提出了关于获得知情同意的实际问题。一些患者在理解临床信息方面存在认知和情感问题,并且显然不希望参与有关其治疗的决策。本文认为,此类研究并未削弱他们提供知情同意的潜力。相反,需要足够的资源来培养临床医生更好的沟通技巧,并为患者提供更有效的教育材料。最后,患者之间的认知和情感不平等被认为是更广泛的社会和经济不平等的反映。认真对待知情同意权的研究人员也应该解决这些问题。