Jungbauer Johannes, Wittmund Bettina, Dietrich Sandra, Angermeyer Matthias C
Department of Medical Psychology and Medical Sociology, University of Leipzig, Germany.
Arch Psychiatr Nurs. 2003 Jun;17(3):126-34. doi: 10.1016/s0883-9417(03)00056-6.
This is a follow-up study aimed at investigating subjective burden in parents of patients with schizophrenia during a 12-month period. Using a narrative interview technique, parents were questioned regarding the subject of illness-related burden; follow-up interviews were conducted after 6 and 12 months, respectively. Forty-seven interview sets were examined with the aim of determining different types of burden development. The analysis yielded the following six developmental types: (1). constantly high level of burden; (2). increased burden; (3). reduced burden; (4). shifting burden; (5). preeminence of other burdens; and (6). constantly low level of burden. In general, changes in the parents' burden level are closely interconnected with the illness curve of the patients, with 40% of the study participants experiencing a constantly high level of burden during the course of the study. The results suggest that parents of continuously and severely affected patients are overloaded with their long-term caring tasks. Particularly for these extremely strained parents, practical and psychologic assistance should be provided.
这是一项随访研究，旨在调查精神分裂症患者父母在12个月期间的主观负担。采用叙事访谈技术，就与疾病相关的负担主题对父母进行询问；分别在6个月和12个月后进行随访访谈。对47组访谈进行了检查，目的是确定不同类型的负担发展情况。分析得出以下六种发展类型：（1）持续高负担水平；（2）负担增加；（3）负担减轻；（4）负担转移；（5）其他负担占主导；（6）持续低负担水平。总体而言，父母负担水平的变化与患者的疾病曲线密切相关，40%的研究参与者在研究过程中经历了持续高负担水平。结果表明，持续且严重受影响患者的父母因长期护理任务而不堪重负。尤其对于这些极度紧张的父母，应提供实际和心理援助。
