Broder H L, Smith F B, Strauss R P
Department of Biostatistics, University of North Carolina, Chapel Hill 27599.
Cleft Palate Craniofac J. 1992 May;29(3):262-7. doi: 10.1597/1545-1569_1992_029_0262_hopwcp_2.3.co_2.
This study examined ratings regarding satisfaction with facial appearance and speech performance from 495 parent-child pairs. Data were obtained from school-aged children (5-18 years old) and their parents using standardized independent interviews. Results revealed that 54 percent of the children with cleft lip (CL) or cleft lip and palate (CLP) were very pleased with their appearance, and 62 percent of the cleft palate or CLP subjects were very pleased with speech. Low, but statistically significant correlations exist between the female subjects and their parents in satisfaction with appearance. Although older cleft lip and/or palate patients reported increased satisfaction with speech, no age differences in patient satisfaction with appearance were observed in subjects with CL/CLP. Parents of females expressed more concern about their daughters' appearance than parents of males, while parents of males were more concerned about speech. Implications for craniofacial habilitation teams and research suggestions are discussed.
本研究调查了495对亲子对面部外观和言语表现满意度的评分。数据通过对学龄儿童（5至18岁）及其父母进行标准化的独立访谈获得。结果显示，54%的唇裂（CL）或唇腭裂（CLP）患儿对自己的外貌非常满意，62%的腭裂或CLP患者对言语非常满意。女性受试者与其父母在外貌满意度方面存在低但具有统计学意义的相关性。尽管年龄较大的唇裂和/或腭裂患者对言语的满意度有所提高，但在CL/CLP受试者中，未观察到患者对外貌满意度的年龄差异。女性患儿的父母比男性患儿的父母更担心女儿的外貌，而男性患儿的父母则更担心言语。文中还讨论了对颅面康复团队的启示和研究建议。
