Nicholas David B, Darch Jane, McNeill Ted, Brister Leanne, O'Leary Kimberly, Berlin Deborah, Koller Donna F
The Hospital for Sick Children, 555 University Avenue, Room 1171, Toronto, ON, Canada.
Soc Work Health Care. 2007;44(3):205-23. doi: 10.1300/J010v44n03_06.
This study identifies perceived outcomes following hospitalized children's participation in a pediatric online support network. Nineteen participants were interviewed, including child and adolescent patients who had used the network while in hospital, their parent/family caregiver, and a familiar health care provider. This triadic sampling approach provided a range of stakeholder perceptions. Results convey a wide spectrum of benefits and challenges in accessing and utilizing an online support network for hospitalized children. Participation in the network was identified as a means of fostering pediatric patient enjoyment, education, connection with peers, and coping. Information, social connection and distraction served as catalysts fostering positive outcomes for children. Identified barriers to network participation included inaccessibility and limited availability of computers, issues with technology, and discomfort with online interaction. Findings advance understanding of online networks as supportive resources for seriously ill children and their families.
本研究确定了住院儿童参与儿科在线支持网络后的感知结果。对19名参与者进行了访谈，包括在住院期间使用过该网络的儿童和青少年患者、他们的父母/家庭照顾者以及一位熟悉的医疗服务提供者。这种三元抽样方法提供了一系列利益相关者的看法。结果表明，在为住院儿童访问和利用在线支持网络方面存在广泛的益处和挑战。参与该网络被视为促进儿科患者享受、教育、与同龄人联系和应对的一种方式。信息、社交联系和分散注意力是促进儿童产生积极结果的催化剂。确定的网络参与障碍包括计算机无法访问和可用性有限、技术问题以及对在线互动的不适。研究结果增进了对在线网络作为重症儿童及其家庭支持资源的理解。
