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年轻人在学校管理哮喘和糖尿病的经历。

Young people's experiences of managing asthma and diabetes at school.

作者信息

Newbould J, Francis S-A, Smith F

机构信息

Department of Practice and Policy, School of Pharmacy, University of London, London, UK.

出版信息

Arch Dis Child. 2007 Dec;92(12):1077-81. doi: 10.1136/adc.2006.110536. Epub 2007 Sep 12.

Abstract

PURPOSE

To examine the experiences and concerns of young people and their parents regarding the management of medication for asthma or diabetes whilst at school.

METHODS

Face-to-face semi-structured interviews were conducted with 69 young people aged 8-15 years (43 with asthma and 26 with diabetes) and their parents (138 interviews in total) in their own homes. Respondents were recruited through randomly selected general practice surgeries in contrasting areas in South East England. Interviews were audio-recorded, transcribed verbatim and analysed using established qualitative analytical procedures.

RESULTS

Young people with asthma and diabetes discussed difficulties regarding access to and use of their medicines at school which may jeopardise optimal condition management. School medicines policies could be a further hindrance. Young people endeavour to find ways to accommodate their medication and condition related needs whilst at school, in an attempt to limit the impact of their condition upon school activities such as sport, school trips and relationships with peers. Parents expressed concern regarding the awareness and levels of support available to their sons/daughters, in particular if a crisis should develop.

DISCUSSION

In order to ensure optimal care, there is a need for the development of protocols tailored to the needs of young people with different conditions. These should preferably be devised in partnership between the young person, their parents and the school to ensure that the flexibility and support required for optimal management are offered.

摘要

目的

探讨青少年及其父母在学校期间对哮喘或糖尿病药物管理的经历与担忧。

方法

在69名8至15岁青少年(43名患哮喘,26名患糖尿病)及其父母家中进行面对面半结构式访谈(共138次访谈)。通过在英格兰东南部不同地区随机选择的全科诊所招募受访者。访谈进行录音,逐字转录,并采用既定的定性分析程序进行分析。

结果

患哮喘和糖尿病的青少年讨论了在学校获取和使用药物方面的困难,这可能危及最佳病情管理。学校的药品政策可能会成为进一步的阻碍。青少年努力寻找方法来满足他们在学校期间的用药及与病情相关的需求,试图限制病情对体育活动、学校旅行及与同伴关系等学校活动的影响。父母对子女可获得的认知和支持水平表示担忧,尤其是在出现危机时。

讨论

为确保最佳护理,需要制定针对不同病情青少年需求的方案。这些方案最好由青少年、其父母和学校共同制定,以确保提供最佳管理所需的灵活性和支持。

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