Babiker Amir, Alaqeel Bothainah, Alsaeed Mohammed, Aljahdali Ghadeer, Almunif Abdulrahman, Sandhu Sundeep
Department of Pediatrics, King Abdullah Specialized Children Hospital, Ministry of the National Guard - Health Affairs, Riyadh, Saudi Arabia.
College of Medicine, King Saud bin Abdulaziz University for Health Sciences, Riyadh, Saudi Arabia.
J Family Med Prim Care. 2020 Mar 26;9(3):1772-1774. doi: 10.4103/jfmpc.jfmpc_1157_19. eCollection 2020 Mar.
Young children with diabetes (YCD) are a particularly vulnerable group because they are reliant on adult carers in their management. Diabetes treating teams (DTT) have a responsibility towards YCD targeting good glycemic control (GC) to improve quality of life and reduce risk of complications. It can be difficult, however, in occasions to balance between providing support for struggling families and considering safeguarding YCD who are not well looked after by carers in their management. We report a 6-year-old girl with type 1 diabetes with HbA1c ranged between 10.7% and 15.7%. A number of social factors have influenced her diabetes control including parental separation, maternal mental health concerns and lack of family support. Each time, these issues have been addressed, and also when grandparents were involved, a transient short-lived improvement in GC was observed. However, there were always ongoing concerns about mother's lack of engagement with the DTT. Similar cases continue to pose significant challenges for DTT, worldwide. A balance should be kept between providing adequate support for such families against a possible need for safeguarding YCD. Using a patient centered approach, if there is no improvement in GC despite taking all measures to support mothers or families who struggle with their YCD management, it becomes difficult to justify not involving the safeguarding team and social services.
患有糖尿病的幼儿(YCD)是一个特别脆弱的群体,因为他们在疾病管理方面依赖成人照顾者。糖尿病治疗团队(DTT)对YCD负有责任,目标是实现良好的血糖控制(GC),以提高生活质量并降低并发症风险。然而,在某些情况下,很难在为困难家庭提供支持与考虑保护那些在疾病管理中未得到照顾者妥善照料的YCD之间取得平衡。我们报告了一名6岁的1型糖尿病女孩,其糖化血红蛋白(HbA1c)在10.7%至15.7%之间。一些社会因素影响了她的糖尿病控制,包括父母离异、母亲的心理健康问题以及家庭支持的缺乏。每次解决这些问题时,以及祖父母参与进来时,都观察到血糖控制有短暂的改善。然而,人们一直担心母亲与糖尿病治疗团队缺乏互动。类似的案例在全球范围内继续给糖尿病治疗团队带来重大挑战。在为这类家庭提供充分支持与可能需要保护YCD之间应保持平衡。采用以患者为中心的方法,如果尽管采取了所有措施来支持那些在YCD管理方面有困难的母亲或家庭,但血糖控制仍无改善,那么不涉及保护团队和社会服务就很难说得过去。