King's National Institute for Health Research Patient Safety and Service Quality Research Centre, King's College London, UK.
Sociol Health Illn. 2012 Jan;34(1):114-29. doi: 10.1111/j.1467-9566.2011.01367.x. Epub 2011 Aug 3.
In the social worlds of assisted conception and stem cell science, uncertainties proliferate and particular framings of the future may be highly strategic. In this article we explore meanings and articulations of the future using data from our study of ethical and social issues implicated by the donation of embryos to human embryonic stem cell research in three linked assisted conception units and stem cell laboratories in the UK. Framings of the future in this field inform the professional management of uncertainty and we explore some of the tensions this involves in practice. The bifurcation of choices for donating embryos into accepting informed uncertainty or not donating at all was identified through the research process of interviews and ethics discussion groups. Professional staff accounts in this study contained moral orientations that valued ideas such as engendering patient trust by offering full information, the sense of collective ownership of the National Heath Service and publicly funded science and ideas for how donors might be able to give restricted consent as a third option.
在辅助受孕和干细胞科学的社会领域,不确定性大量增加,对未来的特定构想可能具有高度的战略性。在本文中,我们使用来自英国三个辅助受孕单位和干细胞实验室的胚胎捐赠研究中涉及的伦理和社会问题的研究数据,探讨了未来的意义和表达。这个领域的未来构想为不确定性的专业管理提供了信息,我们探讨了这在实践中涉及的一些紧张关系。通过访谈和伦理讨论小组的研究过程,确定了将胚胎捐赠的选择分为接受知情不确定性或根本不捐赠的分叉。本研究中的专业人员的说法包含了一些道德取向,例如通过提供全面信息来赢得患者的信任、对国民保健制度和公共资助的科学的集体所有权的意识,以及如何让捐赠者能够作为第三种选择给予有限同意的想法。