Iwelunmor J, Airhihenbuwa C O, Okoror T A, Brown D C, BeLue R
Department of Biobehavioral Health, The Pennsylvania State University, University Part, PA 16802, USA.
Int Q Community Health Educ. 2006;27(4):321-35. doi: 10.2190/IQ.27.4.d.
This study examines the role of family in the care and support of people living with HIV/AIDS (PLWHA) as a way of reducing the burden of stigma in the family. The PEN-3 model provided the cultural framework for this study. Data were drawn from participants' responses in 27 focus groups interviews conducted in South Africa. Participants were asked to discuss experiences of people living with HIV and AIDS in the family. The results highlight the positive and supportive aspects of the family, acknowledge the existential and unique aspects, and discuss the negative experiences shared by participants. This study's findings stress the need to take into account families' experiences with HIV and AIDS in the development of interventions aimed at reducing the burden of the disease on family systems and improving care and support for PLWHA.
本研究探讨家庭在照顾和支持艾滋病毒/艾滋病感染者（PLWHA）方面的作用，以此作为减轻家庭耻辱感负担的一种方式。PEN - 3模型为本研究提供了文化框架。数据取自于在南非进行的27次焦点小组访谈中参与者的回答。参与者被要求讨论家庭中艾滋病毒和艾滋病感染者的经历。研究结果突出了家庭积极和支持性的方面，承认了存在的和独特的方面，并讨论了参与者分享的负面经历。本研究的结果强调，在制定旨在减轻疾病对家庭系统的负担并改善对艾滋病毒/艾滋病感染者的护理和支持的干预措施时，需要考虑家庭与艾滋病毒和艾滋病相关的经历。
