Storstein A
Department of Neurology, Haukeland University Hospital, Bergen, Norway.
Acta Neurol Scand Suppl. 2011(191):5-11. doi: 10.1111/j.1600-0404.2011.01550.x.
How to deliver bad news to patients is a crucial part of medical practice. Many neurological diseases are incurable, progressive and result in physical or cognitive disabilities, which pose special challenges in the process of communication. Information about diagnosis, therapy and prognosis should be given in an appropriate setting and tailored to the patient's needs and cognitive level of functioning. Support and advice to the family and a team-oriented approach in the follow-up of neurological patients are of high importance. Patient autonomy, truth disclosure expectations and the access to other sources of information is important aspects that influence communication. There is a need for a special and continuous focus on communication in the education of neurologists with regard to the specific needs of this field. Attention should be given to the consequences of neurological disease as well as to therapy and prognosis.
如何向患者传达坏消息是医疗实践的关键部分。许多神经系统疾病无法治愈、呈进行性发展并导致身体或认知残疾，这在沟通过程中带来了特殊挑战。关于诊断、治疗和预后的信息应在适当的环境中提供，并根据患者的需求和功能认知水平进行调整。对患者家属的支持和建议以及对神经系统疾病患者随访采取团队协作的方法至关重要。患者自主权、真实信息披露期望以及获取其他信息来源是影响沟通的重要方面。在神经科医生的教育中，有必要针对该领域的特殊需求，持续特别关注沟通问题。应关注神经系统疾病的后果以及治疗和预后情况。
