Andreoni B, Goldhirsch A, Orecchia R, Venturino M, Spirito R, Tadini L, Corbellini C, Bertani E, Veronesi U
Division General Surgery, European Institute of Oncology, 20141 Milan, Italy.
Ecancermedicalscience. 2009;3:158. doi: 10.3332/ecancer.2009.158. Epub 2009 Sep 29.
Respecting the wishes of an adequately informed patient should be a priority in any health structure. A patient with advanced or terminal cancer should be allowed to express their will during the most important phases of their illness. Unfortunately, this is seldom the case, and in general instructions regarding an individual's medical care preferences, i.e., their 'living will', expressed when healthy, often change with the onset of a serious illness.At the European Institute of Oncology (IEO), a clinical study is ongoing to verify whether, during clinical practice, the patient is adequately informed to sign an 'informed consent', in a fully aware manner, that will allow the patient and doctor to share in the decisions regarding complex treatment strategies (living will). A further aim of the study is to verify if health workers, both in hospital and at home, respect the patient's will.The observational study 'Respecting the patient's wishes: Correlation between administered treatment and that accepted by the patient in their Living Will' was approved by the IEO Ethical Committee in April 2008.
在任何医疗体系中,尊重充分知情患者的意愿都应是首要任务。患有晚期或终末期癌症的患者应被允许在其疾病的最重要阶段表达自己的意愿。不幸的是,情况往往并非如此,而且一般来说,个人在健康时表达的关于医疗护理偏好的指示,即他们的“生前预嘱”,在重病发作时常常会改变。在欧洲肿瘤研究所(IEO),一项临床研究正在进行,以验证在临床实践中,患者是否得到充分告知,从而能够完全知情地签署一份“知情同意书”,这份同意书将使患者和医生能够共同参与有关复杂治疗策略(生前预嘱)的决策。该研究的另一个目的是验证医院和家庭中的医护人员是否尊重患者的意愿。观察性研究“尊重患者意愿:所给予的治疗与患者生前预嘱中接受的治疗之间的相关性”于2008年4月获得IEO伦理委员会批准。