Department of Epidemiology & Community Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Genet Med. 2012 Dec;14(12):963-70. doi: 10.1038/gim.2012.87. Epub 2012 Aug 16.
Effective parental education about newborn blood-spot screening may facilitate prompt follow-up, reduce psychosocial harms, and promote trust in screening programs. However, little is known about the aspects of education delivery and content that are of most importance for fostering understanding and meeting parental expectations. We aimed to identify elements of newborn blood-spot screening education and their associations with mothers' knowledge and satisfaction levels.
We conducted a survey (by mail) of 1,712 mothers who were residing in Ontario, Canada, and whose infants had recently undergone newborn blood-spot screening.
We received 750 completed questionnaires (response rate 47%). Factors associated with respondents' higher knowledge of newborn blood-spot screening were higher level of education (odds ratio = 2.79), English being spoken at home (odds ratio = 1.96), receiving an information sheet at the time of newborn blood-spot screening (odds ratio = 1.57), and receiving information about how to interpret the results (odds ratio = 2.65). Factors associated with being satisfied were: receiving information prenatally (odds ratio = 2.35), from a health-care professional (odds ratio = 4.54), or from an information sheet at the time of newborn blood-spot screening (odds ratio = 1.72); and receiving messages about the purpose of screening (odds ratio = 3.78), the communication process (odds ratio = 2.57), the interpretation of the results (odds ratio = 4.19), and sample-handling methods (odds ratio = 3.13).
Promoting mothers' understanding and meeting their expectations with respect to education about newborn blood-spot screening may require greater engagement with prenatal providers. It also calls for a greater emphasis on communicating with mothers about how blood samples are handled and about the meaning of the test results.
有效的新生儿足跟血筛查家长教育可以促进及时的随访，减少心理社会伤害，并增强对筛查项目的信任。然而，对于促进理解和满足家长期望的教育内容和传递方面的重要性，我们知之甚少。我们旨在确定新生儿足跟血筛查教育的要素及其与母亲的知识和满意度水平的关系。
我们对居住在加拿大安大略省、其婴儿最近接受过新生儿足跟血筛查的 1712 名母亲进行了邮件调查。
我们收到了 750 份完整的问卷（应答率为 47%）。与母亲对新生儿足跟血筛查的较高认知相关的因素包括较高的教育水平（优势比=2.79）、在家中说英语（优势比=1.96）、在新生儿足跟血筛查时收到信息单（优势比=1.57），以及收到有关如何解释结果的信息（优势比=2.65）。与满意度相关的因素包括：在产前（优势比=2.35）、从保健专业人员（优势比=4.54）或在新生儿足跟血筛查时的信息单（优势比=1.72）收到信息；以及收到关于筛查目的（优势比=3.78）、沟通过程（优势比=2.57）、结果解释（优势比=4.19）和样本处理方法（优势比=3.13）的信息。
促进母亲对新生儿足跟血筛查的理解和满足他们的期望可能需要与产前提供者进行更多的互动。这也需要更加重视与母亲沟通有关血液样本的处理方式以及测试结果的含义。
