Department of Population Health Sciences, School of Medicine and Public Health, University of Wisconsin-Madison, 610 North Walnut Street, Office 503, Madison, WI 53726, USA.
Qual Life Res. 2013 Aug;22(6):1177-87. doi: 10.1007/s11136-012-0260-1. Epub 2012 Sep 15.
This review sought to identify and summarize the instruments adapted or developed for measuring HRQoL among young children (<8 years) living in resource-limited settings.
A review of the literature was conducted in two phases. Phase one searched the PubMed, PsycInfo, Web of Knowledge (Web of Science), African Index Medicus, and SocINDEX databases and identified widely used child HRQoL instruments. Phase two reviewed the articles using the selected HRQoL instruments and extracted information on their use in resource-limited settings including adaption processes.
Seven instruments were identified that measured the HRQoL of young children. Six had been used in resource-limited settings. Of the 452 articles using these instruments, a total of 23 (5 %) studies used one of the identified HRQoL instruments in a resource-limited setting. Among these studies, 39 % employed an adaptation process for the use of that instrument. No instruments had been developed specifically for measuring the HRQoL of young children in resource-limited settings.
If pediatric HRQoL instruments are to be used in resource-limited settings, it is critical that they be developed and adequately adapted to those settings. Only then will interventions lead to larger increases in the overall HRQoL and well-being of children.
本综述旨在识别和总结适用于测量资源有限环境中幼儿（<8 岁）生活的健康相关生活质量（HRQoL）的工具。
文献综述分两个阶段进行。第一阶段在 PubMed、PsycInfo、Web of Knowledge（Web of Science）、非洲医学索引和 SocINDEX 数据库中进行检索，确定了广泛使用的儿童 HRQoL 工具。第二阶段使用选定的 HRQoL 工具对这些文章进行了回顾，并提取了有关它们在资源有限环境中的使用情况的信息，包括适应过程。
确定了 7 种用于测量幼儿 HRQoL 的工具。其中 6 种已在资源有限的环境中使用。在使用这些工具的 452 篇文章中，共有 23 篇（5%）研究在资源有限的环境中使用了其中一种确定的 HRQoL 工具。在这些研究中，39%采用了适应过程来使用该工具。没有专门为测量资源有限环境中幼儿的 HRQoL 而开发的工具。
如果要在资源有限的环境中使用儿科 HRQoL 工具，则必须针对这些环境进行开发和充分调整。只有这样，干预措施才能使儿童的整体 HRQoL 和幸福感得到更大的提高。
