Department of Global Health, International Training and Education Center for Health, University of Washington, Seattle, USA.
AIDS Patient Care STDS. 2012 Oct;26(10):614-20. doi: 10.1089/apc.2012.0106. Epub 2012 Sep 17.
Observational studies have examined the prevalence and impact of internalized stigma among African American women living with HIV, but there are no intervention studies investigating stigma reduction strategies in this population. Based on qualitative data previously collected, we adapted the International Center for Research on Women's HIV Stigma Toolkit for a domestic population of African American women to be consistent with Corrigan's principles of strategic stigma change. We implemented the intervention, led by an African American woman living with HIV, as a workshop across two afternoons. The participants discussed issues "triggered" by videos produced specifically for this purpose, learned coping mechanisms from each other, and practiced them in role plays with each other. We pilot tested the intervention with two groups of women (total N=24), measuring change in internalized stigma with the Stigma Scale for Chronic Illness before and after workshop participation. Sixty-two percent of the participants self-reported acquiring HIV through heterosexual sexual contact, 17% through intravenous drug use, 4% in utero, and 13% did not know the route of transmission. The intervention was feasible, enthusiastically accepted by the women, and led to decreased stigma from the start of the workshop to the end (p=0.05) and 1 week after (p=0.07) the last session of workshop. Findings suggest the intervention warrants further investigation.
观察性研究已经考察了生活在 HIV 中的非裔美国女性内化污名的普遍性和影响,但没有干预研究调查这一人群的污名减少策略。基于之前收集的定性数据,我们改编了国际妇女研究中心的 HIV 污名工具包,以适应非裔美国女性的国内人口,并符合科里根的战略污名改变原则。我们由一名感染 HIV 的非裔美国女性领导,在两个下午的时间里开展了这项干预工作。参与者讨论了专门为此目的制作的视频所引发的问题,从彼此那里学习应对机制,并在角色扮演中相互练习。我们用两组女性(共 24 人)对干预措施进行了试点测试,在参加工作坊前后使用慢性病污名量表测量内化污名的变化。62%的参与者自述通过异性性接触感染了 HIV,17%通过静脉吸毒,4%在子宫内,13%不知道传播途径。该干预措施切实可行,深受女性欢迎,从工作坊开始到结束(p=0.05)以及工作坊最后一次会议结束后一周(p=0.07),污名程度均有所下降。研究结果表明,该干预措施值得进一步研究。