Martinsen Randi, Kirkevold Marit, Sveen Unni
Department of Nursing Science, Faculty of Medicine, Institute of Health and Society, University of Oslo, P.O. Box 1130, Blindern, 0318 Oslo, Norway ; Department of Nursing and Mental Health, Hedmark University College, P.O. Box 400, 2418 Elverum, Norway.
Nurs Res Pract. 2012;2012:948791. doi: 10.1155/2012/948791. Epub 2012 Dec 11.
The psychosocial consequences following a stroke are known to be challenging, influencing the stroke survivors' ability to participate in and carry out the taken-for-granted roles and activities in family life. This study explored how living with the consequences of stroke impacted on family life in the late recovery phase, that is, six months or more after stroke onset. Twenty-two stroke survivors aged 20-61 years were interviewed in-depth six months to nine years after stroke onset. The interviews were analyzed applying a narrative, hermeneutic phenomenological approach. The findings revealed challenges that varied with time, from an initial struggle to suffice in and balance the relationships and roles within the family early after the stroke, towards a more resigned attitude later on in the stroke trajectory. The struggles are summarized in two main themes: "struggling to reenter the family" and "screaming for acceptance." Nonestablished people living with stroke and stroke survivors in parental roles seem to be particularly vulnerable. Being provided with opportunities to narrate their experiences to interested and qualified persons outside the home context might be helpful to prevent psychosocial problems.
中风后的心理社会后果具有挑战性，会影响中风幸存者参与和履行家庭生活中习以为常的角色与活动的能力。本研究探讨了中风后遗症对康复后期家庭生活的影响，即中风发作六个月或更久之后。对22名年龄在20至61岁之间的中风幸存者在中风发作六个月至九年之后进行了深入访谈。采用叙事性诠释现象学方法对访谈进行分析。研究结果揭示了随时间变化的挑战，从中风后早期在家庭中努力满足并平衡各种关系和角色的挣扎，到中风病程后期更为顺从的态度。这些挣扎归纳为两个主要主题：“努力重新融入家庭”和“渴望被接纳”。中风患者以及担任父母角色的中风幸存者似乎特别脆弱。为他们提供机会向家庭之外感兴趣且有资质的人讲述自身经历，可能有助于预防心理社会问题。
