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Assessment of neurological and behavioural function: the NIH Toolbox.神经和行为功能评估:美国国立卫生研究院工具箱
Lancet Neurol. 2010 Feb;9(2):138-9. doi: 10.1016/S1474-4422(09)70335-7.
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Convergence and divergence: differences in disability prevalence estimates in the United States and Canada based on four health survey instruments.趋同与差异:基于四种健康调查工具对美国和加拿大残疾患病率估计的差异
Soc Sci Med. 2009 Aug;69(4):543-52. doi: 10.1016/j.socscimed.2009.06.017. Epub 2009 Jul 1.
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Prevalence and most common causes of disability among adults--United States, 2005.2005年美国成年人中的残疾患病率及最常见病因
MMWR Morb Mortal Wkly Rep. 2009 May 1;58(16):421-6.
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Methodological issues related to longitudinal epidemiological assessment of developmental trajectories in children.与儿童发育轨迹的纵向流行病学评估相关的方法学问题。
J Epidemiol Community Health. 2009 Jan;63 Suppl 1:i1-3. doi: 10.1136/jech.2007.070813.
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Measurement validity in cross-cultural comparative research.跨文化比较研究中的测量效度。
Epidemiol Psichiatr Soc. 2008 Jul-Sep;17(3):211-20. doi: 10.1017/s1121189x00001305.
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Deconstructing race and ethnicity: implications for measurement of health outcomes.解构种族与族裔:对健康结果测量的影响
Med Care. 2006 Nov;44(11 Suppl 3):S10-6. doi: 10.1097/01.mlr.0000245427.22788.be.
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Culturally competent assessment practice in the United States.美国具有文化胜任力的评估实践。
J Pers Assess. 1996 Jun;66(3):472-87. doi: 10.1207/s15327752jpa6603_2.
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A comprehensive method for the translation and cross-cultural validation of health status questionnaires.一种用于健康状况调查问卷翻译及跨文化验证的综合方法。
Eval Health Prof. 2005 Jun;28(2):212-32. doi: 10.1177/0163278705275342.
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Cultural considerations and issues in measurement.测量中的文化考量与问题
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Guidelines on Multicultural Education, Training, Research, Practice, and Organizational Change for Psychologists.心理学家多元文化教育、培训、研究、实践及组织变革指南。
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在特殊人群中使用 NIH 工具包:评估儿科、老年、文化多样、非英语和残疾个体的注意事项。

Using the NIH Toolbox in special populations: considerations for assessment of pediatric, geriatric, culturally diverse, non-English-speaking, and disabled individuals.

机构信息

Northwestern University Feinberg School of Medicine, Chicago, IL, USA.

出版信息

Neurology. 2013 Mar 12;80(11 Suppl 3):S13-9. doi: 10.1212/WNL.0b013e3182872e26.

DOI:10.1212/WNL.0b013e3182872e26
PMID:23479537
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3662333/
Abstract

BACKGROUND

In order to develop health outcomes measures that are relevant and applicable to the general population, it is essential to consider the needs and requirements of special subgroups, such as the young, elderly, disabled, and people of different ethnic and cultural backgrounds, within that population.

METHODS

The NIH Toolbox project convened several working groups to address assessment issues for the following subgroups: pediatric, geriatric, cultural, non-English-speaking, and disabled. Each group reviewed all NIH Toolbox instruments in their entirety.

RESULTS

Each working group provided recommendations to the scientific study teams regarding instrument content, presentation, and administration. When feasible and appropriate, instruments and administration procedures have been modified in accordance with these recommendations.

CONCLUSION

Health outcome measurement can benefit from expert input regarding assessment considerations for special subgroups.

摘要

背景

为了开发与一般人群相关且适用的健康结果衡量标准,必须考虑到该人群中特殊亚组(如年轻人、老年人、残疾人以及不同种族和文化背景的人)的需求和要求。

方法

NIH 工具包项目召集了多个工作组,以解决以下亚组的评估问题:儿科、老年、文化、非英语使用者和残疾。每个小组都对 NIH 工具包中的所有工具进行了全面审查。

结果

每个工作组都向科学研究团队提供了有关工具内容、呈现方式和管理方面的建议。在可行和适当的情况下,已根据这些建议修改了工具和管理程序。

结论

健康结果衡量可以从有关特殊亚组评估考虑因素的专家意见中受益。