在特殊人群中使用 NIH 工具包：评估儿科、老年、文化多样、非英语和残疾个体的注意事项。
Using the NIH Toolbox in special populations: considerations for assessment of pediatric, geriatric, culturally diverse, non-English-speaking, and disabled individuals.
机构信息
Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
出版信息
Neurology. 2013 Mar 12;80(11 Suppl 3):S13-9. doi: 10.1212/WNL.0b013e3182872e26.
Abstract
BACKGROUND
In order to develop health outcomes measures that are relevant and applicable to the general population, it is essential to consider the needs and requirements of special subgroups, such as the young, elderly, disabled, and people of different ethnic and cultural backgrounds, within that population.
METHODS
The NIH Toolbox project convened several working groups to address assessment issues for the following subgroups: pediatric, geriatric, cultural, non-English-speaking, and disabled. Each group reviewed all NIH Toolbox instruments in their entirety.
RESULTS
Each working group provided recommendations to the scientific study teams regarding instrument content, presentation, and administration. When feasible and appropriate, instruments and administration procedures have been modified in accordance with these recommendations.
CONCLUSION
Health outcome measurement can benefit from expert input regarding assessment considerations for special subgroups.
摘要
背景
为了开发与一般人群相关且适用的健康结果衡量标准，必须考虑到该人群中特殊亚组（如年轻人、老年人、残疾人以及不同种族和文化背景的人）的需求和要求。
方法
NIH 工具包项目召集了多个工作组，以解决以下亚组的评估问题：儿科、老年、文化、非英语使用者和残疾。每个小组都对 NIH 工具包中的所有工具进行了全面审查。
结果
每个工作组都向科学研究团队提供了有关工具内容、呈现方式和管理方面的建议。在可行和适当的情况下，已根据这些建议修改了工具和管理程序。
结论
健康结果衡量可以从有关特殊亚组评估考虑因素的专家意见中受益。
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