Lipstein Ellen A, Brinkman William B, Fiks Alexander G, Hendrix Kristin S, Kryworuchko Jennifer, Miller Victoria A, Prosser Lisa A, Ungar Wendy J, Fox David
Division of Adolescent and Transition Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH (EAL)
James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH (EAL, WBB)
Med Decis Making. 2015 Apr;35(3):403-8. doi: 10.1177/0272989X14546901. Epub 2014 Aug 21.
There is growing interest in pediatric decision science, spurred by policies advocating for children's involvement in medical decision making. Challenges specific to pediatric decision research include the dynamic nature of child participation in decisions due to the growth and development of children, the family context of all pediatric decisions, and the measurement of preferences and outcomes that may inform decision making in the pediatric setting. The objectives of this article are to describe each of these challenges, to provide decision researchers with insight into pediatric decision making, and to establish a blueprint for future research that will contribute to high-quality pediatric medical decision making. Much work has been done to address gaps in pediatric decision science, but substantial work remains. Understanding and addressing the challenges that exist in pediatric decision making may foster medical decision-making science across the age spectrum.
在倡导儿童参与医疗决策的政策推动下,人们对儿科决策科学的兴趣与日俱增。儿科决策研究特有的挑战包括:由于儿童的成长和发育,儿童参与决策具有动态性;所有儿科决策都处于家庭环境中;以及测量可能为儿科环境中的决策提供信息的偏好和结果。本文的目的是描述这些挑战中的每一个,为决策研究人员提供对儿科决策的深入了解,并为有助于高质量儿科医疗决策的未来研究制定蓝图。为弥合儿科决策科学的差距已经做了很多工作,但仍有大量工作要做。理解和应对儿科决策中存在的挑战可能会促进全年龄段的医疗决策科学发展。