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医疗保健中的患者伙伴关系模式:必要转变的概念框架。

The patient-as-partner approach in health care: a conceptual framework for a necessary transition.

作者信息

Karazivan Philippe, Dumez Vincent, Flora Luigi, Pomey Marie-Pascale, Del Grande Claudio, Ghadiri Djahanchah Philip, Fernandez Nicolas, Jouet Emmanuelle, Las Vergnas Olivier, Lebel Paule

机构信息

Dr. Karazivan is a family physician and researcher, University of Montreal Hospital Research Centre, University of Montreal, Montreal, Quebec, Canada. Mr. Dumez is a patient and codirector, Direction of Collaboration and Patient Partnership, Faculty of Medicine, University of Montreal, Montreal, Quebec, Canada. Dr. Flora is a patient, researcher, and educational consultant, Laboratoire Interuniversitaire EA 3971 EXPERICE, Université Paris 8, Paris, France. Dr. Pomey is an associate professor, Department of Health Administration, School of Public Health, Institute of Public Health, University of Montreal, Montreal, Quebec, Canada. Mr. Del Grande is a research associate, University of Montreal Hospital Research Centre, University of Montreal, Montreal, Quebec, Canada. Dr. Ghadiri is a patient's relative and assistant professor, HEC Montréal, University of Montreal, Montreal, Quebec, Canada. Dr. Fernandez is a patient and professor, Département d'éducation et formation spécialisées, Université du Québec à Montréal, Montreal, Quebec, Canada. Dr. Jouet is a patient and researcher, Laboratoire de recherche de l'Établissement Public de Santé de Maison Blanche, Paris, France. Dr. Las Vergnas is a patient's relative and director of doctoral research, ED 139, Université Paris X, Paris, France. Dr. Lebel is an associate professor, Department of Family Medicine, University of Montreal, Montreal, Quebec, Canada.

出版信息

Acad Med. 2015 Apr;90(4):437-41. doi: 10.1097/ACM.0000000000000603.

Abstract

The prevalence of chronic diseases today calls for new ways of working with patients to manage their care. Although patient-centered approaches have contributed to significant advances in care and to treatments that more fully respect patients' preferences, values, and personal experiences, the reality is that health care professionals still hold a monopoly on the role of healer. Patients live with their conditions every day and are experts when it comes to their own experiences of illness; this expertise should be welcomed, valued, and fostered by other members of the care team. The patient-as-partner approach embodies the ideal of making the patient a bona fide member of the health care team, a true partner in his or her care. Since 2010, the University of Montreal, through the Direction of Collaboration and Patient Partnership, has embraced this approach. Patients are not only active members of their own health care team but also are involved in research and provide valuable training to health sciences students. Including patients as full partners in the health care team entails a significant shift in both the medical practice and medical education cultures. In this perspective, the authors describe this innovative approach to patient care, including the conceptual framework used in its development and the main achievements of patient partners in education, health care, and research.

摘要

当今慢性病的流行态势,需要采用新的方式与患者合作,以管理他们的医疗护理。尽管以患者为中心的方法已推动医疗护理取得了重大进展,并带来了更充分尊重患者偏好、价值观和个人经历的治疗方法,但现实情况是,医疗保健专业人员在治疗者角色方面仍占据主导地位。患者每天都与自己的病情相伴,在自身疾病经历方面堪称专家;这种专业知识应受到护理团队其他成员的欢迎、重视和培养。患者作为伙伴的方法体现了让患者成为医疗保健团队的真正成员、其医疗护理的真正伙伴这一理想。自2010年以来,蒙特利尔大学通过合作与患者伙伴关系指导部门采用了这种方法。患者不仅是自身医疗保健团队的积极成员,还参与研究,并为健康科学专业的学生提供有价值的培训。将患者作为医疗保健团队的正式伙伴纳入其中,需要医疗实践和医学教育文化都发生重大转变。从这个角度出发,作者描述了这种创新的患者护理方法,包括其发展过程中使用的概念框架以及患者伙伴在教育、医疗护理和研究方面取得的主要成就。

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