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类风湿因子实验室检测结果的传达:患者和医生想要什么?

Communicating laboratory test results for rheumatoid factor: what do patients and physicians want?

作者信息

Kelman Ariella, Robinson Caroline O, Cochin Elisenda, Ahluwalia Nina J, Braverman Julia, Chiauzzi Emil, Simacek Kristina

机构信息

Genentech, South San Francisco, CA, USA; Division of Immunology and Rheumatology, Stanford University Medical School, Stanford, CA, USA.

Genentech, South San Francisco, CA, USA.

出版信息

Patient Prefer Adherence. 2016 Dec 13;10:2501-2517. doi: 10.2147/PPA.S104396. eCollection 2016.

Abstract

OBJECTIVE

This study aimed to explore patient and physician perspectives on current laboratory test reporting practices and to elicit ideas for improvement.

METHODS

Two independent studies were conducted. The first solicited members of an online physician community for opinions on current laboratory test reporting practices and possible improvements. The second addressed the same topic, but solicited patient feedback, and included an evaluation of a mock laboratory test report for the rheumatoid factor blood test.

RESULTS

Both physicians and patients expressed a desire for patient-friendly information on laboratory reports. Physicians expressed a need for education for patients around false-positive and false-negative results within laboratory reports, while patients sought context around the meaning of results, relevance to other tests, and follow-up steps.

CONCLUSION

Physicians and patients see value in enhancing laboratory test reports to improve communication. While reports should include the context that patients value, they should also contain cautionary interpretation emphasized by physicians. Patient consultation on improving laboratory reports may help improve such patient-focused communication and promote greater patient understanding of health information, thereby increasing patient participation in their own health care and improving outcomes.

PRACTICE IMPLICATIONS

Laboratory reports are typically designed by experts. Including patients in laboratory report design may facilitate communication and improve outcomes through better patient engagement.

摘要

目的

本研究旨在探讨患者和医生对当前实验室检查报告做法的看法,并征集改进意见。

方法

进行了两项独立研究。第一项研究向一个在线医生社区的成员征求对当前实验室检查报告做法及可能改进之处的意见。第二项研究涉及同一主题,但征求患者反馈,并包括对类风湿因子血液检查模拟实验室检查报告的评估。

结果

医生和患者都表示希望实验室报告能提供对患者友好的信息。医生表示需要对患者进行有关实验室报告中假阳性和假阴性结果的教育,而患者则寻求结果含义的背景信息、与其他检查的相关性以及后续步骤。

结论

医生和患者都认为增强实验室检查报告以改善沟通具有价值。虽然报告应包含患者重视的背景信息,但也应包含医生强调的警示性解读。就改进实验室报告征求患者意见可能有助于改善这种以患者为中心的沟通,并促进患者对健康信息有更深入的理解,从而提高患者对自身医疗保健的参与度并改善治疗效果。

实践意义

实验室报告通常由专家设计。让患者参与实验室报告设计可能通过更好地吸引患者来促进沟通并改善治疗效果。

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