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生物样本库研究中的结果反馈:全球趋势与解决方案

Returning Results in Biobank Research: Global Trends and Solutions.

作者信息

De Clercq Eva, Kaye Jane, Wolf Susan M, Koenig Barbara A, Elger Bernice S

机构信息

1 Institute for Biomedical Ethics, University of Basel , Basel, Switzerland .

2 Nuffield Department of Population Health, University of Oxford , Oxford, United Kingdom .

出版信息

Genet Test Mol Biomarkers. 2017 Mar;21(3):128-131. doi: 10.1089/gtmb.2016.0394. Epub 2017 Feb 1.

Abstract

In many countries around the world, biobanks have become crucial resources for the conduct of biomedical research, facilitating many kinds of research, including international collaborations. The focus of this special issue is on a looming ethical issue that has become a focus of debate-the return of research results and incidental findings to biobank participants. Although the articles in this issue do not provide a final answer to the ethical, legal, and social dilemmas that arise in the context of the return of results, the intent of the collection is to approach this issue from multiple perspectives and within an international context spanning the United Kingdom, continental Europe including Eastern Europe, the United States, and the Middle East.

摘要

在世界上许多国家,生物样本库已成为开展生物医学研究的关键资源,推动了包括国际合作在内的多种研究。本期特刊的重点是一个日益凸显的伦理问题,该问题已成为辩论焦点——将研究结果和偶然发现反馈给生物样本库参与者。尽管本期文章并未就结果反馈背景下出现的伦理、法律和社会困境给出最终答案,但本合集的目的是从多个角度并在涵盖英国、包括东欧在内的欧洲大陆、美国和中东的国际背景下探讨这一问题。

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