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探索注意力缺陷多动障碍患儿家庭照顾者的需求:一项定性研究

Exploring the Needs of Family Caregivers of Children with Attention Deficit Hyperactivity Disorder: A Qualitative Study.

作者信息

Pahlavanzadeh Saeid, Mousavi Sharifeh, Maghsoudi Jahangir

机构信息

Nursing and Midwifery Care Research Centre, Faculty of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.

Department of Psychiatric Nursing, Faculty of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.

出版信息

Iran J Nurs Midwifery Res. 2018 Mar-Apr;23(2):149-154. doi: 10.4103/ijnmr.IJNMR_16_17.

Abstract

BACKGROUND

Attention deficit hyperactivity disorder (ADHD) is one of the most common chronic childhood disorders that lead to dysfunction and disability in childhood and subsequently be careful. This study aimed to understand the needs of the children's caregivers in Iran.

MATERIALS AND METHODS

This qualitative research was conducted in 2016. Using purposive sampling, 27 participants from 20 families of children with ADHD were interviewed. Unstructured interviews were conducted within 6 months in Isfahan. Data gathering continued until no new data were accessed. Data were analyzed using qualitative content analysis.

RESULTS

The results of this research are shown in three main categories: (1) The caregiver's need for having sufficient information about the disorder, its cause and treatments (pharmacological and nonpharmacological); (2) the need to have enough knowledge about communication problems while caring for a sick child; and (3) the need to improve the performance of care. They were classified under the relevant concept.

CONCLUSIONS

Caregivers of children with ADHD have different needs and problems and assessing them would decrease the child's problems and consequently, the family's problems. It would also increase the sense of control and authority over the child's condition in the caregivers. Since this disorder is chronic and permanent, ignoring the needs of caregivers not only would cut the process of the child's treatment but would also intensify the family's and child's problems. So it is recommended to conduct further studies about each of the resulted concepts in this study and the obstacles for reaching them.

摘要

背景

注意力缺陷多动障碍(ADHD)是最常见的儿童慢性疾病之一,会导致儿童期功能障碍和残疾,后续需加以关注。本研究旨在了解伊朗儿童照料者的需求。

材料与方法

这项定性研究于2016年开展。采用目的抽样法,对来自20个患有ADHD儿童家庭的27名参与者进行了访谈。在伊斯法罕于6个月内进行了非结构化访谈。数据收集持续到没有新的数据可得。采用定性内容分析法对数据进行分析。

结果

本研究结果呈现为三个主要类别:(1)照料者需要获得有关该疾病、其病因及治疗方法(药物和非药物)的充分信息;(2)在照料患病儿童时需要具备有关沟通问题的足够知识;(3)需要提高照料表现。它们被归类到相关概念之下。

结论

ADHD儿童的照料者有不同的需求和问题,对其进行评估会减少儿童的问题,进而减少家庭问题。这也会增强照料者对儿童病情的控制感和掌控权。由于这种疾病是慢性且持久的,忽视照料者的需求不仅会中断儿童的治疗过程,还会加剧家庭和儿童的问题。因此,建议针对本研究中得出的每个概念及其实现过程中的障碍开展进一步研究。

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