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涉及急性护理中痴呆症患者的治疗决策:范围综述。

Treatment decision making involving patients with dementia in acute care: A scoping review.

机构信息

School of Nursing, University of Wisconsin, Madison, USA.

William S. Middleton Memorial Veterans Hospital, Madison, USA; Department of Psychiatry, University of Wisconsin, School of Medicine and Public Health, Madison, USA.

出版信息

Patient Educ Couns. 2018 Nov;101(11):1884-1891. doi: 10.1016/j.pec.2018.06.017. Epub 2018 Jun 28.

DOI:10.1016/j.pec.2018.06.017
PMID:29980337
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6179913/
Abstract

OBJECTIVE

To summarize the evidence regarding the factors and processes of treatment decision making involving a person with dementia (PWD) in the acute care setting.

METHODS

We conducted a scoping review, searching 4 databases (PubMed, CINAHL, Web of Science, & PsychINfo) for articles that contained primary data from a quantitative or qualitative study involving treatment decision making in the acute care setting for PWD and were published in English. We categorized the factors and processes of decision making identified in each article using inductive content analysis. We also consulted with healthcare practitioners to receive stakeholder input on our findings.

RESULTS

Our search initially revealed 12,478 articles, of which 28 were included in the review. We identified 5 categories of factors that influence the decision-making process: knowing the patient, culture and systems, role clarity, appropriateness of palliative care in dementia, and caregiver need for support.

CONCLUSION

Our findings highlight the complexities of the decision-making process and the importance of attending to the needs of the caregiver, healthcare practitioners, and the patient.

PRACTICE IMPLICATIONS

It is important to address beliefs of involving palliative care for a PWD and the role of each healthcare discipline.

摘要

目的

总结涉及急性护理环境中痴呆症患者(PWD)的治疗决策因素和过程的证据。

方法

我们进行了范围界定审查,在 4 个数据库(PubMed、CINAHL、Web of Science 和 PsychINFO)中搜索了包含 PWD 在急性护理环境中进行治疗决策的主要数据的定量或定性研究的文章,且这些文章必须以英文发表。我们使用归纳内容分析对每篇文章中确定的决策因素和过程进行了分类。我们还咨询了医疗保健从业者,以获取利益相关者对我们研究结果的意见。

结果

我们的搜索最初显示了 12478 篇文章,其中 28 篇被纳入了综述。我们确定了影响决策过程的 5 类因素:了解患者、文化和系统、角色明确、痴呆症姑息治疗的适宜性以及照顾者对支持的需求。

结论

我们的研究结果强调了决策过程的复杂性,以及关注照顾者、医疗保健从业者和患者需求的重要性。

实践意义

解决涉及姑息治疗 PWD 的信念以及每个医疗保健学科的作用非常重要。

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本文引用的文献

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Preventing Burdensome Transitions of Nursing Home Residents with Advanced Dementia: It's More than Advance Directives.防止晚期痴呆症养老院居民的沉重过渡:这不仅仅是预先指示。
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End of Life Care: A Scoping Review of Experiences of Advance Care Planning for People with Dementia.临终关怀:对痴呆症患者预先护理计划经验的范围审查。
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Decision-making on behalf of people living with dementia: how do surrogate decision-makers decide?为痴呆症患者做决策:替代决策者是如何做出决定的?
J Med Ethics. 2017 Jan;43(1):35-40. doi: 10.1136/medethics-2015-103301. Epub 2016 Oct 25.
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A systematic review of effectiveness of decision aids to assist older patients at the end of life.一项关于辅助老年临终患者的决策辅助工具有效性的系统评价。
Patient Educ Couns. 2017 Mar;100(3):425-435. doi: 10.1016/j.pec.2016.10.007. Epub 2016 Oct 11.
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Association of Increasing Use of Mechanical Ventilation Among Nursing Home Residents With Advanced Dementia and Intensive Care Unit Beds.养老院中患有晚期痴呆症的居民和 ICU 床位的机械通气使用量不断增加的关联。
JAMA Intern Med. 2016 Dec 1;176(12):1809-1816. doi: 10.1001/jamainternmed.2016.5964.
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End-of-life decision making for persons with dementia: Proxies' perception of support.痴呆症患者的临终决策:代理人对支持的看法。
Dementia (London). 2018 May;17(4):478-493. doi: 10.1177/1471301216648473. Epub 2016 May 9.
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Conflict in the intensive care unit: Nursing advocacy and surgical agency.重症监护病房中的冲突:护理倡导与外科干预
Nurs Ethics. 2018 Feb;25(1):69-79. doi: 10.1177/0969733016638144. Epub 2016 Mar 31.
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A systematic review of barriers and facilitators to and interventions for proxy decision-making by family carers of people with dementia.对痴呆症患者家庭照料者代理决策的障碍、促进因素及干预措施的系统评价。
Int Psychogeriatr. 2015 Aug;27(8):1301-12. doi: 10.1017/S1041610215000411. Epub 2015 Apr 14.
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Percutaneous endoscopic gastrostomy (PEG) tubes are placed in elderly adults in Japan with advanced dementia regardless of expectation of improvement in quality of life.经皮内镜下胃造口术(PEG)管在日本被放置在患有晚期痴呆的老年患者中,无论其生活质量是否有望改善。
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Medical Decisions Made by Surrogates for Persons with Advanced Dementia within Weeks or Months of Death.由代理人在晚期痴呆症患者死亡前数周或数月内做出的医疗决策。
AJOB Prim Res. 2011 Oct;2(4):61-65. doi: 10.1080/21507716.2011.627580.