Department of International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Department of International Health, Center for Human Nutrition, Johns Hopkins Bloomberg School of Public Health, Room W2041A, 615 North Wolfe St, Baltimore, MD, 21205-2179, USA.
Prev Sci. 2020 Jan;21(Suppl 1):22-32. doi: 10.1007/s11121-018-0949-7.
This paper describes capacity development as a key aspect of community-based research with indigenous communities. University research engagement with indigenous communities includes extensive, and often negative, historical antecedents. We discuss strategies for developing effective, egalitarian, and balanced indigenous community-university relationships to build research capacity of these communities, and to create sustainable partnerships to improve health and wellness, and to reduce health disparities. We draw on the experience of eight investigators conducting research with indigenous communities to assess effective strategies for building and enhancing partnerships, including (1) supporting indigenous investigator development; (2) developing university policies and practices sensitive and responsive to Indigenous community settings and resources, and training for research; (3) developing community and scientifically acceptable research designs and practices; (4) aligning indigenous community and university review boards to enhance community as well as individual protection (e.g., new human subjects training for Indigenous research, joint research oversight, adaptation of shorter consent forms, appropriate incentives, etc.); (5) determining appropriate forms of dissemination (i.e., Indian Health Services provider presentation, community reports, digital stories, etc.); (6) best practices for sharing credit; and (7) reducing systematic discrimination in promotion and tenure of indigenous investigators and allies working in indigenous communities.
本文将能力建设描述为社区为基础的与原住民社区合作研究的一个关键方面。大学与原住民社区的研究合作包括广泛的、往往是负面的历史背景。我们讨论了制定有效、平等和平衡的原住民社区与大学关系的策略,以建立这些社区的研究能力,并建立可持续的伙伴关系,以改善健康和福祉,减少健康差距。我们借鉴了八位研究人员与原住民社区合作的经验,评估了建立和加强伙伴关系的有效策略,包括(1)支持原住民调查员的发展;(2)制定对原住民社区环境和资源敏感且响应的大学政策和做法,并进行研究培训;(3)制定社区和科学上可接受的研究设计和实践;(4)调整原住民社区和大学审查委员会,以加强社区和个人保护(例如,为原住民研究提供新的人类主题培训,联合研究监督,较短的同意书形式的适应,适当的激励等);(5)确定适当的传播形式(即,印度卫生服务提供者介绍、社区报告、数字故事等);(6)分享信用的最佳实践;以及(7)减少在原住民社区工作的原住民调查员和盟友在晋升和终身职位方面的系统性歧视。