Stewart M Kathryn, Spencer Nicola, Huff Davis Anna, Hart Camille, Boateng Beatrice
Translational Research Institute, University of Arkansas for Medical Sciences.
Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences (UAMS).
J Clin Transl Sci. 2018 Apr;2(2):73-78. doi: 10.1017/cts.2018.20. Epub 2018 Aug 8.
Effective translational research requires engagement and collaboration between communities, researchers, and practitioners. We describe a community scientist academy (CSA) developed at the suggestion of our CTSA's community advisory board to engage and capacitate community members by 1) increasing community members' and patients' understanding about the research process and 2) increasing their access to opportunities to influence and participate in research. A joint CTSA/community planning committee developed this 8-hour workshop including sessions on: 1) research definitions and processes; 2) study design; 3) study implementation; and 4) ways to get involved in research. The workshop format includes interactive exercises, content slides and videos, and researcher and community presenters.
Community-based information sessions allowed assessment of community interest before piloting. Two pilots of the CSA were conducted with community members and patients. Participant data and a pre/post knowledge and feedback survey provides evaluation data.
The pilot included 24 diverse participants, over half of whom had not previously participated in research. Evaluation data suggest knowledge gains. Post- CSA, one third have reviewed CTSA pilot grants and over 80% want to attend further training.
The CSA can demystify the research process for those underrepresented in research and facilitate their engagement and influence within CTSAs.
有效的转化研究需要社区、研究人员和从业者之间的参与和合作。我们描述了一个社区科学家学院（CSA），它是应我们CTSA的社区咨询委员会的建议而设立的，旨在通过以下方式让社区成员参与并增强他们的能力：1）提高社区成员和患者对研究过程的理解；2）增加他们获得影响和参与研究机会的途径。一个CTSA与社区联合规划委员会开发了这个为期8小时的工作坊，包括以下几个环节：1）研究定义和过程；2）研究设计；3）研究实施；4）参与研究的方式。工作坊形式包括互动练习、内容幻灯片和视频，以及研究人员和社区代表的展示。
基于社区的信息发布会在试点之前对社区兴趣进行了评估。对社区成员和患者进行了两次CSA试点。参与者数据以及前后知识和反馈调查提供了评估数据。
试点包括24名不同的参与者，其中一半以上的人此前未曾参与过研究。评估数据表明知识有所收获。参加CSA之后，三分之一的人查看了CTSA试点资助项目，超过80%的人希望参加进一步的培训。
CSA可以消除研究中代表性不足人群对研究过程的神秘感，并促进他们在CTSA中的参与和影响力。
