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对一件展现先天性心脏病和心脏移植复杂性的艺术装置作品的观众反应。

'': an audience response to an art installation representing the complexity of congenital heart disease and heart transplantation.

作者信息

Biglino Giovanni, Layton Sofie, Lee Matthew, Sophocleous Froso, Hall Susannah, Wray Jo

机构信息

Translational Health Sciences, Bristol Medical School, Bristol Heart Institute, University of Bristol, Bristol, UK.

GOSH Arts, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

出版信息

Med Humanit. 2019 Dec;45(4):399-405. doi: 10.1136/medhum-2018-011466. Epub 2018 Oct 18.

Abstract

The arts can aid the exploration of individual and collective illness narratives, with empowering effects on both patients and caregivers. The artist, partly acting as conduit, can translate and re-present illness experiences into artwork. But how are these translated experiences received by the viewer-and specifically, how does an audience respond to an art installation themed around paediatric heart transplantation and congenital heart disease? The installation, created by British artist Sofie Layton and titled , was presented at an arts-and-health event. The piece comprised three-dimensional printed medical models of hearts with different congenital defects displayed under bell jars on a stainless steel table reminiscent of the surgical theatre, surrounded by hospital screens. The installation included a soundscape, where the voice of a mother recounting the journey of her son going through heart transplantation was interwoven with the voice of the artist reading medical terminology. A two-part survey was administered to capture viewers' expectations and their response to the piece. Participants (n=125) expected to acquire new knowledge around heart disease, get a glimpse of patients' experiences and be surprised by the work, while after viewing the piece they mostly felt empathy, surprise, emotion and, for some, a degree of anxiety. Viewers found the installation more effective in communicating the experience of heart transplantation than in depicting the complexity of cardiovascular anatomy (p<0.001, z=7.56). Finally, analysis of open-ended feedback highlighted the intimacy of the installation and the privilege viewers felt in sharing a story, particularly in relation to the soundscape, where the connection to the narrative in the piece was reportedly strengthened by the use of sound. In conclusion, an immersive installation including accurate medical details and real stories narrated by patients can lead to an empathic response and an appreciation of the value of illness narratives.

摘要

艺术可以帮助探索个人和集体的疾病叙事,对患者和护理人员都有赋能作用。艺术家部分地充当了渠道,能够将疾病经历转化并重新呈现为艺术作品。但是,观众如何接受这些被转化的经历呢?具体而言,观众对以小儿心脏移植和先天性心脏病为主题的艺术装置会作何反应?这件由英国艺术家索菲·莱顿创作、名为《 》的装置作品,在一场艺术与健康活动中展出。该作品由带有不同先天性缺陷的心脏三维打印医学模型组成,放置在不锈钢桌子上的钟形罩下,让人联想到手术室,周围环绕着医院的屏风。该装置还包括一个音景,一位母亲讲述儿子心脏移植历程的声音与艺术家朗读医学术语的声音交织在一起。我们进行了一项分为两部分的调查,以了解观众的期望以及他们对这件作品的反应。参与者(n = 125)期望获得有关心脏病的新知识, glimpse of patients' experiences and be surprised by the work, while after viewing the piece they mostly felt empathy, surprise, emotion and, for some, a degree of anxiety. Viewers found the installation more effective in communicating the experience of heart transplantation than in depicting the complexity of cardiovascular anatomy (p<0.001, z=7.56). Finally, analysis of open-ended feedback highlighted the intimacy of the installation and the privilege viewers felt in sharing a story, particularly in relation to the soundscape, where the connection to the narrative in the piece was reportedly strengthened by the use of sound. In conclusion, an immersive installation including accurate medical details and real stories narrated by patients can lead to an empathic response and an appreciation of the value of illness narratives.

这段英文文本存在部分乱码(glimpse of patients' experiences and be surprised by the work),请你检查一下是否文本有误,以便我能更准确地为你提供完整的翻译。按照现有文本翻译为:

艺术可以帮助探索个人和集体的疾病叙事,对患者和护理人员都有赋能作用。艺术家部分地充当了渠道,能够将疾病经历转化并重新呈现为艺术作品。但是,观众如何接受这些被转化的经历呢?具体而言,观众对以小儿心脏移植和先天性心脏病为主题的艺术装置会作何反应?这件由英国艺术家索菲·莱顿创作、名为《 》的装置作品,在一场艺术与健康活动中展出。该作品由带有不同先天性缺陷的心脏三维打印医学模型组成,放置在不锈钢桌子上的钟形罩下,让人联想到手术室,周围环绕着医院的屏风。该装置还包括一个音景,一位母亲讲述儿子心脏移植历程的声音与艺术家朗读医学术语的声音交织在一起。我们进行了一项分为两部分调查,以了解观众的期望以及他们对这件作品的反应。参与者(n = 125)期望获得有关心脏病的新知识,了解患者的经历并对作品感到惊讶,而在观看作品后,他们大多感到共情、惊讶、感动,对一些人来说,还有一定程度的焦虑。观众发现该装置在传达心脏移植经历方面比描绘心血管解剖结构的复杂性更有效(p<0.001,z = 7.56)。最后,对开放式反馈的分析突出了该装置的亲密感以及观众在分享故事时所感受到的特权,特别是在音景方面,据报道,声音增强了与作品中叙事的联系。总之,一个包含准确医学细节和患者讲述的真实故事的沉浸式装置可以引发共情反应,并让人欣赏疾病叙事的价值。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3c3b/7029249/9aeef90174d8/medhum-2018-011466f01.jpg

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