Department of Family and Emergency Medicine, Faculty of Medicine, Laval University, 1050 avenue de la Médecine, Pavillon Ferdinand-Vandry, Québec City, QC, G1V 0A6, Canada.
Office of Education and Professional Development, Laval University, Quebec City, QC, Canada.
Clin Chem Lab Med. 2019 Feb 25;57(3):359-364. doi: 10.1515/cclm-2018-0634.
People are increasingly able to access their laboratory results via patient portals. The potential benefits provided by such access, such as reductions in patient burden and improvements in patient satisfaction, disease management, and medical decision making, also come with potentially valid concerns about such results causing confusion or anxiety among patients. However, it is possible to clearly convey the meaning of results and, when needed, indicate required action by designing systems to present laboratory results adapted to the people who will use them. Systems should support people in converting the potentially meaningless data of results into meaningful information and actionable knowledge. We offer 10 recommendations toward this goal: (1) whenever possible, provide a clear takeaway message for each result. (2) Signal whether differences are meaningful or not. (3) When feasible, provide thresholds for concern and action. (4) Individualize the frame of reference by allowing custom reference ranges. (5) Ensure the system is accessible. (6) Provide conversion tools along with results. (7) Design in collaboration with users. (8) Design for both new and experienced users. (9) Make it easy for people use the data as they wish. (10) Collaborate with experts from relevant fields. Using these 10 methods and strategies renders access to laboratory results into meaningful and actionable communication. In this way, laboratories and medical systems can support patients and families in understanding and using their laboratory results to manage their health.
人们越来越能够通过患者门户访问他们的实验室结果。这种访问带来了潜在的好处,例如减轻患者负担、提高患者满意度、改善疾病管理和医疗决策,同时也带来了一些潜在的合理担忧,即这些结果可能会导致患者感到困惑或焦虑。然而,通过设计适合使用实验室结果的人员的系统来清晰传达结果的含义,并在需要时指出所需的行动,就有可能做到这一点。系统应该帮助人们将结果中潜在的无意义数据转化为有意义的信息和可操作的知识。我们提出了 10 条建议来实现这一目标:(1)尽可能为每个结果提供一个清晰的结论信息。(2)表明差异是否有意义。(3)在可行的情况下,为需要关注和采取行动的情况提供阈值。(4)通过允许自定义参考范围来个性化参考框架。(5)确保系统可访问。(6)随结果提供转换工具。(7)与用户合作进行设计。(8)为新用户和有经验的用户设计。(9)使人们能够轻松地按照自己的意愿使用数据。(10)与相关领域的专家合作。使用这 10 种方法和策略可以将实验室结果转化为有意义和可操作的沟通。通过这种方式,实验室和医疗系统可以支持患者和家属理解并使用他们的实验室结果来管理自己的健康。