Li Sara J, Huang Kathie P, Joyce Cara, Mostaghimi Arash
Department of Dermatology, Brigham and Women's Hospital, Boston, MA, USA.
Harvard Medical School, Boston, MA, USA.
Int J Trichology. 2018 Nov-Dec;10(6):271-274. doi: 10.4103/ijt.ijt_93_18.
Alopecia areata (AA) is an autoimmune disease characterized by patches of hair loss that can cause decreased quality of life. This study evaluates the sexual quality of life for patients with AA.
We surveyed patients in the National Alopecia Areata Foundation patient registry using an online version of the validated Sexual Quality of Life for Females (SQOL-F) and Sexual Quality of Life for Males (SQOL-M) questionnaires.
Patient sexual quality of life was measured using the SQOL-F and SQOL-M instruments.
Eighty-one participants with AA (64 females and 17 males) completed the surveys. The mean age was 39.7 ± 13.8 years for women and 37.4 ± 9.9 years for men. Women had a decreased sexual quality of life with mean SQOL-F score of 51.3 ± 22.9. Men had a decreased sexual quality of life with mean SQOL-M score of 62.7 ± 33.9 (higher scores indicate greater sexual quality of life). No statistical difference was found between these two cohorts ( = 0.12). In discussing negative aspects of their sexuality, women strongly identified with emotional statements such as "I feel embarrassed" ( = 48, 75.0%) while men strongly identified with emotional statements such as "I feel anxious" ( = 7, 46.7%). Both cohorts strongly identified with "I feel like I have lost something" ( = 48, 76.2% and = 7, 43.8%, respectively).
This study demonstrates that AA has a negative impact on the patient's sexual quality of life.
斑秃（AA）是一种自身免疫性疾病，其特征为出现脱发斑，可导致生活质量下降。本研究评估了斑秃患者的性生活质量。
我们使用经过验证的女性性生活质量问卷（SQOL-F）和男性性生活质量问卷（SQOL-M）的在线版本，对国家斑秃基金会患者登记处的患者进行了调查。
使用SQOL-F和SQOL-M工具测量患者的性生活质量。
81名斑秃参与者（64名女性和17名男性）完成了调查。女性的平均年龄为39.7±13.8岁，男性为37.4±9.9岁。女性的性生活质量下降，SQOL-F平均得分为51.3±22.9。男性的性生活质量下降，SQOL-M平均得分为62.7±33.9（得分越高表明性生活质量越高）。这两个队列之间未发现统计学差异（P = 0.12）。在讨论其性生活的负面方面时，女性强烈认同诸如“我感到尴尬”之类的情感表述（n = 48，75.0%），而男性强烈认同诸如“我感到焦虑”之类的情感表述（n = 7，46.7%）。两个队列都强烈认同“我感觉自己失去了什么”（分别为n = 48，76.2%和n = 7，43.8%）。
本研究表明，斑秃对患者的性生活质量有负面影响。
