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改善医疗法律预先护理计划。

Improving Medical-Legal Advance Care Planning.

作者信息

Hooper Sarah, Sabatino Charles P, Sudore Rebecca L

机构信息

UCSF/UC Hastings Consortium on Law, Science & Health Policy, Medical-Legal Partnership for Seniors, Atlantic Institute, San Francisco, California, USA.

American Bar Association Commission on Law & Aging, Georgetown University Law Center, Washington District of Columbia, USA.

出版信息

J Pain Symptom Manage. 2020 Aug;60(2):487-494. doi: 10.1016/j.jpainsymman.2020.03.004. Epub 2020 Mar 30.

Abstract

The importance of advance care planning (ACP) has been increasingly recognized by health systems. However, 46%-76% of patients report engaging in ACP with lawyers, whereas only a minority report doing so with physicians. In the U.S., ACP with lawyers focuses on advance directive documents, naturally occurs outside of health care contexts, and is often uninformed by the clinical context, such as one's prognosis and clinical trajectory. These forms are regularly stored at home or at a lawyer's office and not available at the bedside when needed in a medical crisis. Yet, in contrast to clinicians, lawyers hold sophisticated knowledge about their states' advance directive law. Lawyers may also understand clients' socioeconomic context and plans more broadly, which are known to be critical for contextualizing and personalizing patient care but are often not well captured in health care. Aligning medical and legal approaches to ACP is important to ensuring the quality and value of those efforts. As an important first step toward this goal, we convened an interprofessional panel of medical and legal experts to elucidate the state of medical-legal ACP and begin to identify strategies to improve and align practices within and across professions. This article describes the historical disconnects between the medical and legal practice of ACP, recommendations and products of the interprofessional panel, and recommendations for future medical-legal collaboration.

摘要

预先护理计划(ACP)的重要性已日益得到卫生系统的认可。然而,46%-76%的患者报告称与律师进行了预先护理计划,而只有少数患者报告与医生进行了此项计划。在美国,与律师进行的预先护理计划侧重于预先指示文件,通常在医疗保健环境之外进行,并且往往不受临床背景(如患者的预后和临床病程)的影响。这些文件通常存放在家中或律师办公室,在医疗危机需要时无法在床边获取。然而,与临床医生不同,律师对所在州的预先指示法有着深入的了解。律师还可能更广泛地了解客户的社会经济背景和计划,而这些因素对于将患者护理情境化和个性化至关重要,但在医疗保健中往往没有得到充分体现。使医疗和法律层面的预先护理计划方法保持一致,对于确保这些努力的质量和价值至关重要。作为朝着这一目标迈出的重要第一步,我们召集了一个由医学和法律专家组成的跨专业小组,以阐明医疗-法律预先护理计划的现状,并开始确定改进和协调各专业内部及跨专业实践的策略。本文描述了预先护理计划在医学和法律实践之间的历史脱节、跨专业小组的建议和成果,以及对未来医疗-法律合作的建议。

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