Campos Débora Rebollo de, Paiva Carlos Eduardo, Brandão Ana Paula Marinho Silvério, Ameringer Suzanne, Paiva Bianca Sakamoto Ribeiro
Hospital de Câncer de Barretos, Grupo de Pesquisa em Cuidados Paliativos e Qualidade de Vida Relacionada à Saúde (GPQual), Barretos, SP, Brazil.
Virginia Commonwealth University, School of Nursing, Richmond, United States.
J Pediatr (Rio J). 2021 May-Jun;97(3):348-353. doi: 10.1016/j.jped.2020.06.008. Epub 2020 Sep 6.
To translate, culturally adapt, and evaluate the psychometric properties of Adolescent Barriers Questionnaire for use in Brazilian adolescents with cancer aged 12 to 18 years, based on the original American Adolescent Barriers Questionnaire which was designed to measure the extent to which adolescents with cancer have concerns about reporting pain and using analgesics.
The study analyzed the psychometric properties reliability (internal consistency and test-retest) and validity (known groups and convergent) of Adolescent Barriers Questionnaire in adolescents between 12 and 18 years of age with a diagnosis of cancer who were using or who had used analgesic medication (opioid or not) in a pediatric public health institution. It was estimated 64 adolescents as sample size and the research was conclude with 48.
Results of pre-test suggest good understanding (content validity index >0.9). The internal consistency value Cronbach's α was 88%. The convergent validity values ranged between -0.400 and -0.450. Analysis of known groups showed that the instrument discriminated groups of patients with solid vs. hematologic tumors. The intraclass correlation coefficient obtained after retest was 0.863.
After the process of translations, validations and analysis of psychometric properties, the Brazilian Portuguese version of Adolescent Barriers Questionnaire could be considered culturally adapted, valid, and reliable for the Brazilian adolescent population with cancer aged 12 to 18 years and it can be useful in practical clinic, offering the health professionals the opportunity to understand which barriers the adolescent with cancer can encounter and offer, thus, all the support to overcome them.
基于最初的美国青少年障碍问卷,对青少年障碍问卷进行翻译、文化调适并评估其心理测量学特性,以用于12至18岁患癌的巴西青少年。最初的美国青少年障碍问卷旨在测量患癌青少年在报告疼痛和使用镇痛药方面的担忧程度。
该研究分析了青少年障碍问卷在一家儿科公共卫生机构中12至18岁、已诊断患有癌症且正在使用或曾使用镇痛药(无论是否为阿片类药物)的青少年中的心理测量学特性,包括信度(内部一致性和重测)和效度(已知群组和收敛效度)。估计样本量为64名青少年,研究最终纳入48名青少年。
预测试结果表明理解度良好(内容效度指数>0.9)。内部一致性值Cronbach's α为88%。收敛效度值在-0.400至-0.450之间。已知群组分析表明,该工具能够区分实体瘤与血液系统肿瘤患者群体。重测后获得的组内相关系数为0.863。
经过翻译、验证和心理测量学特性分析过程后,青少年障碍问卷的巴西葡萄牙语版本可被认为在文化上适用于12至18岁患癌的巴西青少年群体,具有效度和信度,并且在实际临床中可能有用,为卫生专业人员提供了了解患癌青少年可能遇到的障碍并提供相应支持以帮助他们克服这些障碍的机会。