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研究人员对与边缘化社区利益相关者青年及家庭共同设计数字心理健康干预措施的看法。

Researchers' Perspectives on Digital Mental Health Intervention Co-Design With Marginalized Community Stakeholder Youth and Families.

作者信息

Porche Michelle V, Folk Johanna B, Tolou-Shams Marina, Fortuna Lisa R

机构信息

Department of Psychiatry and Behavioral Sciences, University of California, San Francisco, San Francisco, CA, United States.

出版信息

Front Psychiatry. 2022 Apr 22;13:867460. doi: 10.3389/fpsyt.2022.867460. eCollection 2022.

DOI:10.3389/fpsyt.2022.867460
PMID:35530032
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9072625/
Abstract

Co-design of digital mental health technology with youth and families is a relatively new but growing approach to intervention development. In this perspective article, researchers used collaborative reflexivity through duoethnography methodology to reflect and report on experiences and lessons learned conducting co-designed projects with marginalized youth and families. Researchers engaged in written reflective dialogue regarding projects designed to co-develop technology-based apps and computer programs to support mental health of youth and their families. Reflections described the barriers and challenges for sharing responsibilities with stakeholders who have extensive lived experience but limited exposure to research. Researchers shared insights about their own intersectionality and positionality from marginalized to privileged, relative to co-design participants, and what it means to share authority, authentic partnership, and responsibility in the research process. Cultural understanding may diverge, even between acculturated minority researchers and matched minority stakeholders. While there are a variety of approaches that researchers might refer to as co-design, it is important to be intentional in the implementation of these processes so that collaborations with stakeholder youth and families are neither disingenuous nor exploitative. Implications for equitable and meaningful engagement of marginalized communities in co-design projects for youth mental health are discussed.

摘要

与青少年及其家庭共同设计数字心理健康技术是一种相对较新但正在发展的干预开发方法。在这篇观点文章中,研究人员通过双人民族志方法运用协作反思,来反思和报告与边缘化青少年及其家庭开展共同设计项目的经验和教训。研究人员就旨在共同开发基于技术的应用程序和计算机程序以支持青少年及其家庭心理健康的项目进行了书面反思对话。反思描述了与有丰富生活经验但接触研究有限的利益相关者分担责任时的障碍和挑战。研究人员分享了相对于共同设计参与者,他们自身从边缘化到特权化的交叉性和位置性的见解,以及在研究过程中分享权威、真正的伙伴关系和责任意味着什么。即使在文化适应的少数族裔研究人员和相匹配的少数族裔利益相关者之间,文化理解也可能存在差异。虽然研究人员可能将多种方法称为共同设计,但在实施这些过程时保持刻意性很重要,以便与利益相关者青少年及其家庭的合作既不是虚假的也不是剥削性的。文中讨论了边缘化社区公平且有意义地参与青少年心理健康共同设计项目的意义。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/548f/9072625/bf39bb805c51/fpsyt-13-867460-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/548f/9072625/bf39bb805c51/fpsyt-13-867460-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/548f/9072625/bf39bb805c51/fpsyt-13-867460-g001.jpg

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