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患者报告结局在评估炎症性肠病患者的性健康中的应用。

Patient-Reported Outcomes for the Assessment of Sexual Health Among Patients Affected by Inflammatory Bowel Disease.

机构信息

CEMAD, Inflammatory Bowel Disease Unit, Unità Operativa Complessa di Medicina Interna e Gastroenterologia, Dipartimento di Scienze Mediche e Chirurgiche, Fondazione Policlinico Universitario "A. Gemelli" IRCCS, Rome, Italy.

Dipartimento Universitario di Medicina e Chirurgia Traslazionale, Università Cattolica del Sacro Cuore, Rome, Italy.

出版信息

Rev Recent Clin Trials. 2022 Dec 20;17(4):250-258. doi: 10.2174/1574887117666220630114054.

Abstract

Patients affected by inflammatory bowel disease (IBD) frequently report impaired quality of sexual life and complain of sexual dysfunctions. Both disease-specific features and psychological factors can be held responsible for these conditions. However, sexuality and all matters relating to sexual health are often wrongfully considered unrelated to IBD and, therefore, overlooked during medical visits. To overcome these difficulties and to best assess patients' perceptions about their sexual health status, the use of patient-reported outcomes (PROs) could represent a valid strategy. In real-world studies, several non-IBD specific questionnaires, exploring different domains of sexuality, have been applied and validated for the IBD population. This review summarizes the available evidence on sexual health among IBD patients and the data supporting the application of PROs to screen the quality of sexual life, as well as the rate and types of sexual dysfunctions, among IBD patients.

摘要

受炎症性肠病(IBD)影响的患者常报告其性生活质量受损,并抱怨存在性功能障碍。疾病的特定特征和心理因素都可能导致这些情况。然而,性和所有与性健康相关的问题通常被错误地认为与 IBD 无关,因此在就诊时被忽视。为了克服这些困难并更好地评估患者对其性健康状况的认知,使用患者报告的结局(PROs)可能是一种有效的策略。在真实世界的研究中,已经针对 IBD 人群应用和验证了几种非 IBD 特异性问卷,以探究不同的性领域。本综述总结了 IBD 患者性健康方面的现有证据,以及支持应用 PROs 来筛查 IBD 患者性生活质量、性功能障碍发生率和类型的数据。

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