, Santeon, Utrecht, the Netherlands.
Department of Neurology, OLVG West, Jan Tooropstraat 164, 1061 AE, Amsterdam, the Netherlands.
BMC Neurol. 2022 Jul 5;22(1):245. doi: 10.1186/s12883-022-02679-1.
Patient involvement in discharge planning of patients with stroke can be accomplished by providing personalized outcome information and promoting shared decision-making. The aim of this study was to develop a patient decision aid (PtDA) for discharge planning of hospitalized patients with stroke.
A convergent mixed methods design was used, starting with needs assessments among patients with stroke and health care professionals (HCPs). Results of these assessments were used to develop the PtDA with integrated outcome information in several co-creation sessions. Subsequently, acceptability and usability were tested to optimize the PtDA. Development was guided by the International Patient Decision Aids Standards (IPDAS) criteria.
In total, 74 patients and 111 HCPs participated in this study. A three-component PtDA was developed, consisting of: 1) a printed consultation sheet to introduce the options for discharge destinations, containing information that can be specified for each individual patient; 2) an online information and deliberation tool to support patient education and clarification of patient values, containing an integrated "patients-like-me" model with outcome information about discharge destinations; 3) a summary sheet to support actual decision-making during consultation, containing the patient's values and preferences concerning discharge planning. In the acceptability test, all qualifying and certifying IPDAS criteria were fulfilled. The usability test showed that patients and HCPs highly appreciated the PtDA with integrated outcome information.
The developed PtDA was found acceptable and usable by patients and HCPs and is currently under investigation in a clinical trial to determine its effectiveness.
通过提供个性化的预后信息和促进共同决策，患者可以参与脑卒中患者的出院计划。本研究旨在开发一种用于脑卒中住院患者出院计划的患者决策辅助工具（PtDA）。
采用汇聚混合方法设计，首先在脑卒中患者和卫生保健专业人员（HCP）中进行需求评估。这些评估的结果用于在几个共同创作会议中开发具有综合预后信息的 PtDA。随后，对可接受性和可用性进行测试以优化 PtDA。开发过程遵循国际患者决策辅助标准（IPDAS）标准。
共有 74 名患者和 111 名 HCP 参与了这项研究。开发了一个由三部分组成的 PtDA，包括：1）一张介绍出院目的地选择的印刷咨询表，包含可针对每个患者具体指定的信息；2）一个支持患者教育和澄清患者价值观的在线信息和审议工具，包含一个具有出院目的地预后信息的集成“像我这样的患者”模型；3）一份支持咨询期间实际决策的总结表，包含患者对出院计划的价值观和偏好。在可接受性测试中，所有合格和认证的 IPDAS 标准都得到了满足。可用性测试表明，患者和 HCP 高度赞赏具有综合预后信息的 PtDA。
开发的 PtDA 被患者和 HCP 认为是可接受和可用的，目前正在临床试验中进行有效性研究。
