公众参与干细胞相关研究的关键考量因素。
Critical considerations for public engagement in stem cell-related research.
机构信息
Berman Institute of Bioethics and Department of Medicine, Johns Hopkins University, 1809 Ashland Avenue, Baltimore, MD, USA.
Department of Molecular Cell and Developmental Biology and Center for Reproductive Science, Health and Education, University of California Los Angeles, Los Angeles, CA, USA.
出版信息
Stem Cell Reports. 2023 Feb 14;18(2):420-426. doi: 10.1016/j.stemcr.2023.01.002. Epub 2023 Feb 2.
Public engagement is increasingly recognized as being integral to basic and translational research. Public engagement involves effective communication about research along with the mutual exchange of views and opinions among a wide variety of members in society. As such, public engagement can help to identify issues that must be addressed in order for research to be ethically sound and trustworthy. It is especially critical in research that potentially raises ethical concerns, for example research involving embryos, germline genome editing, stigmatized conditions, and marginalized communities. Therefore, it is not surprising that there have been prominent recent calls for public engagement in the emerging sciences. However, given that there is arguably little agreement about how this should be done and the best ways of doing so, those involved with planning and implementing public engagement can benefit from understanding a broad range of prior experiences on related issues.
公众参与越来越被认为是基础研究和转化研究不可或缺的一部分。公众参与涉及到对研究的有效沟通，以及社会各界广泛成员之间的观点和意见的相互交流。因此，公众参与可以帮助确定为了使研究在伦理上合理和值得信赖而必须解决的问题。在可能引发伦理问题的研究中，公众参与尤为关键，例如涉及胚胎、生殖系基因组编辑、污名化条件和边缘化社区的研究。因此，最近出现了许多呼吁在新兴科学领域进行公众参与的呼声也就不足为奇了。然而，鉴于在应该如何进行以及最好的方法方面几乎没有达成共识，因此，参与规划和实施公众参与的人员可以从了解与相关问题相关的广泛先前经验中受益。
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