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囊性纤维化中的过渡护理。

Transition Care in Cystic Fibrosis.

机构信息

Department of Pediatrics, All India Institute of Medical Sciences, New Delhi, 110029, India.

出版信息

Indian J Pediatr. 2023 Dec;90(12):1223-1226. doi: 10.1007/s12098-023-04571-3. Epub 2023 May 2.

Abstract

Cystic fibrosis (CF) is a chronic childhood illness with gradually improving survival and significant burden of disease during adult life. Transition of CF care from pediatric to an adult based multidisciplinary team is a complex process and careful coordination with a transition key worker is necessary for successful transition without adverse outcome. Transition is associated with a key change in CF management with shift from family-centred care to self-reliance and independence on part of the patient. Readiness and skills of self-managed care play central part in successful transition. Resource materials for transition are available online for different countries for improved readiness and smooth transition. Situation is worse in resource-limited settings as facilities of fully functional adult multidisciplinary care for CF is not readily available.

摘要

囊性纤维化 (CF) 是一种慢性儿童疾病,其生存状况逐渐改善,但在成年期仍有很大的疾病负担。将 CF 护理从儿科过渡到基于多学科团队的成人护理是一个复杂的过程,需要与过渡关键工作人员进行仔细协调,以确保在没有不良后果的情况下顺利过渡。过渡与 CF 管理的一个关键变化相关,即从以家庭为中心的护理转变为患者的自理和独立。自我管理护理的准备情况和技能在成功过渡中起着核心作用。不同国家都有在线的过渡资源材料,以提高准备度和实现平稳过渡。资源有限的环境中情况更糟,因为无法轻易获得功能齐全的成人多学科 CF 护理设施。

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