Fisher Jack, Fones Guy, Arivalagan Yvonne, Ahmadpour Ida, Akselrod Svetlana, Olsen Maia
World Health Organization, Global Coordination Mechanism for the Prevention and Control of Noncommunicable Diseases, Geneva, Switzerland.
Center for Global Health, Department of Neurology, School of Medicine and Health, Technical University of Munich, Munich, Germany.
PLOS Glob Public Health. 2024 May 29;4(5):e0002312. doi: 10.1371/journal.pgph.0002312. eCollection 2024.
As the global public health community continues to reflect and recover from the COVID-19 pandemic, noncommunicable diseases (NCDs), and mental health and neurological conditions remains one of the largest unmet gaps in progress towards meeting the Sustainable Development Goals (SDG). People living with these health conditions, particularly among those most marginalized, acutely understand the impact of these failures in global action and investment. Integrating lived experience into the NCD and mental health response can act as an accelerator for action. Through a participatory process to co-create the WHO Framework on Meaningful Engagement on NCDs, and Mental Health and Neurological Conditions, we conducted a mixed methods and semi-structured approach, including informal consultations, focus groups, in-depth interviews, online surveys, and a short film series, that captured the perspectives of 700 individuals from 111 countries, including 386 individuals with lived experience. Working alongside lived experience communities and other relevant stakeholders, we have established and co-created a set of principles, enablers and actions for operationalizing meaningful engagement, related to dignity and respect, power and equity, inclusivity and intersectionality, commitment and transparency, and institutionalization and contextualization. People with lived experience have a right to be equitably included in all levels of policy-setting, design and implementation of programs, and to have a central role in reforming and reorienting the structures and systems intended to address the complex multifactorial challenges that they face. WHO is committed to leveraging its role in global health to further operationalize meaningful engagement within WHO and its Member States.
随着全球公共卫生界继续从新冠疫情中反思并恢复,非传染性疾病、心理健康和神经疾病仍是实现可持续发展目标进程中最大的未被填补的差距之一。患有这些健康问题的人,尤其是那些最边缘化的人群,深切体会到全球行动和投资方面这些不足所带来的影响。将实际生活经验融入非传染性疾病和心理健康应对措施中可成为行动的加速器。通过一个共同创建世卫组织关于非传染性疾病、心理健康和神经疾病有意义参与框架的参与式过程,我们采用了混合方法和半结构化方法,包括非正式磋商、焦点小组、深入访谈、在线调查以及一个短片系列,收集了来自111个国家的700个人的观点,其中包括386个有实际生活经验的人。与有实际生活经验的群体及其他相关利益攸关方合作,我们确立并共同创建了一套原则、促进因素和行动,以落实有意义的参与,这些原则、促进因素和行动涉及尊严与尊重、权力与公平、包容性与交叉性、承诺与透明度以及制度化与情境化。有实际生活经验的人有权公平地参与各级政策制定、项目设计与实施,并在改革和重新调整旨在应对他们所面临的复杂多因素挑战的结构和系统方面发挥核心作用。世卫组织致力于利用其在全球卫生领域的作用,在世卫组织及其会员国范围内进一步落实有意义的参与。