Heagele Tara, McCrary Brittany
Hunter-Bellevue School of Nursing, Hunter College of the City University of New York, New York, New York, USA.
Center for Sickle Cell Disease, Mount Sinai Hospital Medical Center, New York, New York, USA.
Int Nurs Rev. 2025 Sep;72(3):e70067. doi: 10.1111/inr.70067.
To assess home disaster preparedness levels of individuals with sickle cell disease to determine education and resource needs and inform policy. To evaluate the association between healthcare provider discussion of preparedness and level of preparedness.
Research demonstrates that extreme weather events and public health emergencies result in increased hospital visits for people with sickle cell disease, yet little is known about home disaster preparedness knowledge and actions of these individuals.
Cross-sectional study of US adults diagnosed with sickle cell disease. The independent variable was the healthcare provider discussion of household disaster preparedness. The dependent variable was the Household Emergency Preparedness Instrument's General Preparedness score. Participants self-reported their preparedness actions and disaster supplies through an online survey. Descriptive statistics were analyzed, along with a Welch t test, to examine the associations between the study variables. This study was reported according to the STROBE checklist.
The average General Preparedness score of this sample (N = 32) indicated that the majority of participants were not considered well prepared for disasters. Higher scores were found among participants who had discussions with their healthcare providers about how to prepare for disasters.
The sample's average General Preparedness score was higher than other patient populations assessed with this instrument, possibly due to routine discussions about medical emergency preparedness that individuals with sickle cell disease receive from healthcare providers.
Home disaster preparedness levels should be improved to decrease disaster-related morbidity and mortality.
Nurses should develop or advocate for home disaster preparedness lessons, community interventions, and public policies to meet the unique needs of community members with sickle cell disease before, during, and after disasters.
评估镰状细胞病患者的家庭灾难准备水平，以确定教育和资源需求并为政策提供依据。评估医疗服务提供者关于灾难准备的讨论与准备水平之间的关联。
研究表明，极端天气事件和公共卫生紧急情况会导致镰状细胞病患者的医院就诊次数增加，但对于这些个体的家庭灾难准备知识和行动却知之甚少。
对美国诊断为镰状细胞病的成年人进行横断面研究。自变量是医疗服务提供者关于家庭灾难准备的讨论。因变量是家庭应急准备工具的总体准备得分。参与者通过在线调查自我报告他们的准备行动和灾难用品。分析描述性统计数据，并进行韦尔奇t检验，以检验研究变量之间的关联。本研究按照STROBE清单进行报告。
该样本（N = 32）的平均总体准备得分表明，大多数参与者被认为没有为灾难做好充分准备。与医疗服务提供者讨论过如何为灾难做准备的参与者得分更高。
该样本的平均总体准备得分高于使用该工具评估的其他患者群体，这可能是由于镰状细胞病患者从医疗服务提供者那里接受的关于医疗应急准备的常规讨论。
应提高家庭灾难准备水平，以降低与灾难相关的发病率和死亡率。
护士应制定或倡导家庭灾难准备课程、社区干预措施和公共政策，以满足镰状细胞病社区成员在灾难前、灾难期间和灾难后的独特需求。
