O'Boyle C A
Department of Psychology, Medical School, Royal College of Surgeons in Ireland, Dublin, Eire.
Philos Trans R Soc Lond B Biol Sci. 1997 Dec 29;352(1363):1871-9. doi: 10.1098/rstb.1997.0173.
This paper examines quality of life as a scientific construct with a wide range of applications. The assessment of patients' quality of life is assuming increasing importance in medicine and health care. Illnesses, diseases and their treatments can have significant impacts on such areas of functioning as mobility, mood, life satisfaction, sexuality, cognition and ability to fulfil occupational, social and family roles. The emerging quality of life construct may be viewed as a paradigm shift in outcome measurement since it shifts the focus of attention from symptoms to functioning. This holistic approach more clearly establishes the patient as the centre of attention and subsumes many of the traditional measures of outcome. Quality of life assessment is particularly relevant to ageing populations both for healthy elderly and for those who develop chronic diseases where maintenance of quality of life rather than cure may be the primary goal of treatment. This paper introduces the concept of quality of life and describes the significant difficulties in definition, measurement and interpretation that must be addressed before such measures can be used as reliable and valid indicators of disease impact and treatment outcomes. It is argued that approaches to quality of life assessment in the elderly should incorporate advances in knowledge about the psychological adaptation to ageing. Consequently, the unique perspective of the individual on his or her own quality of life must be incorporated into outcome assessments aimed at improving the quality of health care. Incorporating measures of subjective outcome such as quality of life into policy decisions on resource allocation in health care will prove one of the major challenges for health services over the next decade.
本文探讨生活质量这一具有广泛应用的科学概念。患者生活质量的评估在医学和医疗保健领域正变得越来越重要。疾病及其治疗方法可能会对诸如行动能力、情绪、生活满意度、性功能、认知以及履行职业、社会和家庭角色的能力等功能领域产生重大影响。新兴的生活质量概念可被视为结果测量方面的范式转变,因为它将关注焦点从症状转移到了功能上。这种整体方法更明确地将患者确立为关注的中心,并涵盖了许多传统的结果测量指标。生活质量评估对于老年人群体尤为重要,无论是健康的老年人还是患有慢性病的老年人,对于他们而言,维持生活质量而非治愈疾病可能是治疗的主要目标。本文介绍了生活质量的概念,并描述了在将这些测量指标用作疾病影响和治疗结果的可靠有效指标之前,在定义、测量和解释方面必须解决的重大困难。有人认为,老年人生活质量评估方法应纳入有关心理适应老龄化的知识进展。因此,个人对自身生活质量的独特观点必须纳入旨在提高医疗保健质量而进行的结果评估中。将诸如生活质量等主观结果测量指标纳入医疗保健资源分配的政策决策,将成为未来十年卫生服务面临的主要挑战之一。