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儿童皮肤病生活质量指数:卡通版的验证

The Children's Dermatology Life Quality Index: validation of the cartoon version.

作者信息

Holme S A, Man I, Sharpe J L, Dykes P J, Lewis-Jones M S, Finlay A Y

机构信息

Department of Dermatology, University of Wales College of Medicine, Heath Park, Cardiff CF14 4XN, UK.

出版信息

Br J Dermatol. 2003 Feb;148(2):285-90. doi: 10.1046/j.1365-2133.2003.05157.x.

DOI:10.1046/j.1365-2133.2003.05157.x
PMID:12588381
Abstract

BACKGROUND

In 1995 the Children's Dermatology Life Quality Index (CDLQI) was developed as a tool to allow quality of life assessment of children with skin conditions. This initial questionnaire was in a written format.

OBJECTIVES

Using the same validated questions, a full-colour cartoon version has been developed. The aim of this study was to validate this against the initial written questionnaire in a three-part study.

METHODS

The first part of the study piloted the use of both versions in an outpatient setting. One hundred and one children completed both versions of the CDLQI in a random order. A further 66 children completed the cartoon CDLQI in outpatients, and subsequently completed the cartoon version on the same day at home, which was returned by post. The scores were compared. In the second part, in more controlled conditions to eliminate parental and investigator bias, 107 children with current dermatological problems were administered both versions of the CDLQI in a random order. The scores were analysed, and time to complete each version, and the child and parental preferences, were recorded. The third part assessed compliance by asking 546 children recently reviewed in dermatology clinics to return a single completed postal CDLQI. Half of the children were given the text, and half the cartoon version.

RESULTS

The median age of participating children was 11 years. There was no significant difference in scores between the two versions in both parts 1 and 2, but the cartoon version was completed faster (median 90 s) than the written version (median 120 s) (P < 0.0001). Both children and their parents significantly preferred the cartoon version and found it easier to use. Forty-six per cent of the postal CDLQI questionnaires were returned; there was no difference in compliance between the two versions.

CONCLUSIONS

The cartoon CDLQI is equivalent to the previously validated written CDLQI version, but is faster and easier for children to use, and is preferred by both children and parents.

摘要

背景

1995年,儿童皮肤病生活质量指数(CDLQI)被开发出来,作为评估皮肤病患儿生活质量的工具。最初的问卷采用书面形式。

目的

使用相同的经过验证的问题,开发了一个全彩卡通版本。本研究的目的是在一项分为三个部分的研究中,将其与最初的书面问卷进行验证。

方法

研究的第一部分在门诊环境中试用了两个版本。101名儿童以随机顺序完成了两个版本的CDLQI。另外66名儿童在门诊完成了卡通版CDLQI,随后在当天在家中完成了卡通版,并通过邮寄方式返回。对分数进行了比较。在第二部分中,在更可控的条件下以消除家长和研究者的偏差,107名患有当前皮肤病问题的儿童以随机顺序接受了两个版本的CDLQI。对分数进行了分析,并记录了完成每个版本的时间以及儿童和家长的偏好。第三部分通过要求546名最近在皮肤科诊所接受检查的儿童返回一份填写完整的邮寄CDLQI来评估依从性。一半儿童收到文本版本,另一半收到卡通版本。

结果

参与研究的儿童中位年龄为11岁。在第1部分和第2部分中,两个版本的分数没有显著差异,但卡通版本完成得更快(中位时间90秒),而书面版本(中位时间120秒)(P<0.0001)。儿童及其父母都明显更喜欢卡通版本,并且发现它更易于使用。邮寄的CDLQI问卷有46%被返回;两个版本的依从性没有差异。

结论

卡通版CDLQI与先前经过验证的书面CDLQI版本相当,但对儿童来说使用起来更快、更容易,并且受到儿童和家长的青睐。

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