Schneider Barbara, Scissons Hannah, Arney Laurie, Benson George, Derry Jeff, Lucas Ken, Misurelli Michele, Nickerson Dana, Sunderland Mark
Faculty of Communication and Culture, University of Calgary, Alberta, Canada.
Qual Health Res. 2004 Apr;14(4):562-77. doi: 10.1177/1049732303262423.
The authors describe a participatory research project undertaken by a group of people with schizophrenia under the guidance of a university researcher. Participatory research involves members of the research group in meaningful participation in all stages of the research process. In this study, group members chose the topic-experiences with medical professionals-and method of data collection-in-depth interviews that they conducted with each other. They developed and performed a readers' theater presentation of the results and their recommendations for how they would like to be treated by medical professionals. The results indicate that good communication with medical professionals is essential to people with schizophrenia; it helps them accept the fact that they are ill and learn to live with the illness. The research offered a transformative experience to group members and is contributing to change in the practice of health care for people with severe mental illnesses.
作者描述了一个由一群精神分裂症患者在一名大学研究人员的指导下开展的参与式研究项目。参与式研究让研究团队成员有意义地参与到研究过程的各个阶段。在这项研究中,团队成员选择了“与医学专业人员的经历”这一主题以及数据收集方法——他们相互进行的深度访谈。他们编写并进行了一场读者剧场表演,展示研究结果以及他们对于希望医学专业人员如何对待他们的建议。结果表明,与医学专业人员进行良好沟通对精神分裂症患者至关重要;这有助于他们接受自己患病的事实并学会与疾病共处。该研究为团队成员带来了变革性的体验,并正在推动针对重度精神疾病患者的医疗保健实践发生改变。