Joppich R, Elsner F, Radbruch L
Klinik für Palliativmedizin, Universitätsklinikum, Pauwelsstr. 30, 52074, Aachen, Germany.
Anaesthesist. 2006 May;55(5):502-14. doi: 10.1007/s00101-006-0996-5.
Social developments and medical progress in the last decades have led to a significant change of values in medicine, which spans from the cornerstone of the patient's autonomy to the increasingly difficult decision-making process related to available medical treatments. This conflict exaggerates with end-of-life situations, where a purely palliative approach to the therapy is applied, or in cases of reduced ability for patient's consent. From a legal point of view, many uncertainties have been clarified in recent years. The patient's autonomy has been strengthened, however, the law requires the doctor to review and carefully balance the treatment options so that a new and modified patient-doctor relationship is often necessary in this difficult decision-making process. The doctor should no longer retreat into the classical role of a neutral advisor and leave the complete responsibility of medical decisions to the patient. Instead, in order for the patient to be able to make a balanced and individually tailored autonomous decision, the doctor needs to bring in his medical expertise along with his own personal experiences and personal opinions, as long as he clearly differentiates between personal and professional views. This way the patient will be empowered to make complex medical decisions, considering his personal situation and previous experiences as well as his own set of values. For complex situations medical practitioners can find support from reflection within the treatment team, or through an external ethical advisory panel. Algorithms can be helpful to illustrate the steps in a decision-making process and thus support medical staff in situations of difficult medical decisions.
过去几十年的社会发展和医学进步导致了医学价值观的重大变化,这一变化涵盖了从患者自主权这一基石到与现有医疗治疗相关的日益艰难的决策过程。这种冲突在临终情况(即采用纯粹姑息治疗方法的情况)或患者同意能力降低的情况下会加剧。从法律角度来看,近年来许多不确定性已经得到澄清。患者的自主权得到了加强,然而,法律要求医生审查并仔细权衡治疗方案,因此在这个艰难的决策过程中,往往需要一种新的、经过调整的医患关系。医生不应再退回到中立顾问的传统角色,而将医疗决策的全部责任留给患者。相反,为了使患者能够做出平衡且个性化的自主决策,医生需要引入自己的医学专业知识以及个人经验和个人观点,只要他能清楚地区分个人观点和专业观点。这样,患者将有能力在考虑自身情况、既往经历以及自身价值观的基础上做出复杂的医疗决策。对于复杂情况,医疗从业者可以从治疗团队内部的反思中或通过外部伦理咨询小组获得支持。算法有助于阐明决策过程中的步骤,从而在医疗决策困难的情况下为医务人员提供支持。